Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment
about
Respecting Autonomy Over Time: Policy and Empirical Evidence on Re-Consent in Longitudinal Biomedical ResearchResearch as a Standard of Care in the PICU.Recommendations for ethical approaches to genotype-driven research recruitment.Genotype-driven recruitment: a strategy whose time has come?The meaning of genetic research results: reflections from individuals with and without a known genetic disorder.Research participants' perspectives on genotype-driven research recruitment.Epilepsy patient-participants and genetic research results as "answers".How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?Integrative Clinical Sequencing in the Management of Refractory or Relapsed Cancer in Youth.Am I a control?: Genotype-driven research recruitment and self-understandings of study participants.What Do Parents Think about Chromosomal Microarray Testing? A Qualitative Report from Parents of Children with Autism Spectrum Disorders.Pharmacogenetics in clinical pediatrics: challenges and strategies.Practical, ethical and regulatory considerations for the evolving medical and research genomics landscape.Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.Why do participants enroll in population biobank studies? A systematic literature review.Evidence of broad-based family support for the use of archival childhood tumour samples in future research.The ethics of complexity. Genetics and autism, a literature review.Inclusion of pediatric samples in an opt-out biorepository linking DNA to de-identified medical records: pediatric BioVU.Enrolling Genomics Research Participants through a Clinical Setting: the Impact of Existing Clinical Relationships on Informed Consent and Expectations for Return of Research Results.Parents' Understanding of Genetics and Heritability.The ethics conundrum in Recall by Genotype (RbG) research: Perspectives from birth cohort participantsAttitudes of parents toward the return of targeted and incidental genomic research findings in children
P2860
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P2860
Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment
description
2011 nî lūn-bûn
@nan
2011年の論文
@ja
2011年論文
@yue
2011年論文
@zh-hant
2011年論文
@zh-hk
2011年論文
@zh-mo
2011年論文
@zh-tw
2011年论文
@wuu
2011年论文
@zh
2011年论文
@zh-cn
name
Parent perspectives on pediatr ...... pe-driven research recruitment
@ast
Parent perspectives on pediatr ...... pe-driven research recruitment
@en
type
label
Parent perspectives on pediatr ...... pe-driven research recruitment
@ast
Parent perspectives on pediatr ...... pe-driven research recruitment
@en
prefLabel
Parent perspectives on pediatr ...... pe-driven research recruitment
@ast
Parent perspectives on pediatr ...... pe-driven research recruitment
@en
P2093
P2860
P50
P356
P1476
Parent perspectives on pediatr ...... pe-driven research recruitment
@en
P2093
Emily E Namey
Holly K Tabor
Julia Crouch
Tracy Brazg
P2860
P356
10.1525/JER.2011.6.4.41
P577
2011-12-01T00:00:00Z