about
Non-invasive brain-computer interface system: towards its application as assistive technology.Permissibility of prenatal diagnosis and abortion for fetuses with severe genetic disorder: type 1 spinal muscular atrophyDisability, discrimination and death: is it justified to ration life saving treatment for disabled newborn infants?Home mechanical ventilation in childhood-onset hereditary neuromuscular diseases: 13 years' experience at a single center in Korea.Health and quality of life of ventilator-dependent children.Clinical outcome measures in spinal muscular atrophy.Pulmonary issues in patients with chronic neuromuscular disease.'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.A Qualitative Study of Physician Perspectives on Prognostication in Neonatal Hypoxic Ischemic Encephalopathy.The quality of life of home-ventilated children and their primary caregivers plus the associated social and economic burdens: a prospective study.Should long-term ventilation be offered in severe spinal muscular atrophy.Correlates of health related quality of life in adult patients with spinal muscular atrophy.A new self-report quality of life questionnaire for children with neuromuscular disorders: presentation of the instrument, rationale for its development, and some preliminary results.Tracheotomy and children with spinal muscular atrophy type 1: ethical considerations in the French context.Health-related quality of life in boys with Duchenne muscular dystrophy: agreement between parents and their sons.Physician driven variation in the care of children with spinal muscular atrophy type 1.The Experience of Families With Children With Spinal Muscular Atrophy Type I Across Health Care Systems.Spinal muscular atrophy type 1: is long-term mechanical ventilation ethical?
P2860
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P2860
description
2003 nî lūn-bûn
@nan
2003年の論文
@ja
2003年論文
@yue
2003年論文
@zh-hant
2003年論文
@zh-hk
2003年論文
@zh-mo
2003年論文
@zh-tw
2003年论文
@wuu
2003年论文
@zh
2003年论文
@zh-cn
name
Spinal muscular atrophy type 1 quality of life.
@en
type
label
Spinal muscular atrophy type 1 quality of life.
@en
prefLabel
Spinal muscular atrophy type 1 quality of life.
@en
P2093
P1476
Spinal muscular atrophy type 1 quality of life.
@en
P2093
Al Friedman
Jennifer Majors
John R Bach
P304
P356
10.1097/00002060-200302000-00009
P577
2003-02-01T00:00:00Z