Communicating about haemophilia within the family: the importance of context and of experience.

Communicating about haemophilia within the family: the importance of context and of experience.

Item
http://www.wikidata.org/entity/Q45865826
A family genetic risk communication framework: guiding tool development in genetics health services.Current management of the hemophilic child: a demanding interlocutor. Quality of life and adequate cost-efficacy analysis."It was a lot Tougher than I Thought It would be". A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier.Understanding adherence to treatment and physical activity in children with hemophilia: The role of psychosocial factors.Life experience of the adult and ageing patient with haemophilia. Practical aspects for psychological support.Why Do Parents Want to Know their Child's Carrier Status? A Qualitative Study.'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance.Patient and family trajectories of mitochondrial disease: diversity, uncertainty and genetic risk.Kinscapes, timescapes and genescapes: families living with genetic risk.Carrier testing in haemophilia A and B: adult carriers' and their partners' experiences and their views on the testing of young females.Understanding of genetic inheritance among Xhosa-speaking caretakers of children with hemophilia.Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs.Big Data, Small Talk: Lessons from the Ethical Practices of Interpersonal Communication for the Management of Biomedical Big Data
P2860

Communicating about haemophilia within the family: the importance of context and of experience.

Item
http://www.wikidata.org/entity/Q45865826
description
2007 nî lūn-bûn
@nan
2007年の論文
@ja
2007年学术文章
@wuu
2007年学术文章
@zh
2007年学术文章
@zh-cn
2007年学术文章
@zh-hans
2007年学术文章
@zh-my
2007年学术文章
@zh-sg
2007年學術文章
@yue
2007年學術文章
@zh-hant
name
Communicating about haemophili ...... of context and of experience.
@en
Communicating about haemophili ...... of context and of experience.
@nl
type
label
Communicating about haemophili ...... of context and of experience.
@en
Communicating about haemophili ...... of context and of experience.
@nl
prefLabel
Communicating about haemophili ...... of context and of experience.
@en
Communicating about haemophili ...... of context and of experience.
@nl
P1433
P1476
P2093
P2860
P304
P31
P356
P433
P478
P50
P577
P698
P921
P356
P1433
P1476
Communicating about haemophili ...... e of context and of experience
@en
P2093
P2860
P304
P31
P356
10.1111/J.1365-2516.2006.01417.X
P433
P478
P50
P577
P698
P921