Communicating about haemophilia within the family: the importance of context and of experience.
about
A family genetic risk communication framework: guiding tool development in genetics health services.Current management of the hemophilic child: a demanding interlocutor. Quality of life and adequate cost-efficacy analysis."It was a lot Tougher than I Thought It would be". A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier.Understanding adherence to treatment and physical activity in children with hemophilia: The role of psychosocial factors.Life experience of the adult and ageing patient with haemophilia. Practical aspects for psychological support.Why Do Parents Want to Know their Child's Carrier Status? A Qualitative Study.'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance.Patient and family trajectories of mitochondrial disease: diversity, uncertainty and genetic risk.Kinscapes, timescapes and genescapes: families living with genetic risk.Carrier testing in haemophilia A and B: adult carriers' and their partners' experiences and their views on the testing of young females.Understanding of genetic inheritance among Xhosa-speaking caretakers of children with hemophilia.Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs.Big Data, Small Talk: Lessons from the Ethical Practices of Interpersonal Communication for the Management of Biomedical Big Data
P2860
Q36884558-21C3C6B3-5280-45D2-A8C8-DD84CCF857CDQ38227605-070C1CE1-C4AA-4990-86C9-B89E71300D8DQ38678614-F2119395-7614-4B3C-937C-6347ECB2C4FAQ38772995-DBEFA693-77C3-4E78-ACAB-AC9E3C616EC4Q39181504-3CADD843-D865-4DF8-B3B6-24226497D2F5Q39755342-4B4A7C0A-CA2E-4B45-B9D5-9DCF173C38CDQ39781481-5B036C92-995F-466C-818F-BE69B2C594D5Q45754958-1A78BAF2-E961-4DB3-943E-C56B7FE21C0DQ45788612-7D84DD9F-D89F-4E77-AAC2-3F3CB67A99F7Q45875216-E4B3DD77-AA4B-463D-92D5-86C537C1253AQ45877832-97CE0B30-4C2D-4C86-A9AD-8D0B4546EB0DQ54489357-99F59875-93A8-4B19-A307-02E58038E187Q57266009-93CA46F8-F0A9-4C4B-8016-D36800C8C27B
P2860
Communicating about haemophilia within the family: the importance of context and of experience.
description
2007 nî lūn-bûn
@nan
2007年の論文
@ja
2007年学术文章
@wuu
2007年学术文章
@zh
2007年学术文章
@zh-cn
2007年学术文章
@zh-hans
2007年学术文章
@zh-my
2007年学术文章
@zh-sg
2007年學術文章
@yue
2007年學術文章
@zh-hant
name
Communicating about haemophili ...... of context and of experience.
@en
Communicating about haemophili ...... of context and of experience.
@nl
type
label
Communicating about haemophili ...... of context and of experience.
@en
Communicating about haemophili ...... of context and of experience.
@nl
prefLabel
Communicating about haemophili ...... of context and of experience.
@en
Communicating about haemophili ...... of context and of experience.
@nl
P2093
P2860
P1433
P1476
Communicating about haemophili ...... e of context and of experience
@en
P2093
P2860
P304
P356
10.1111/J.1365-2516.2006.01417.X
P577
2007-03-01T00:00:00Z