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International Charter of principles for sharing bio-specimens and dataFactors Influencing the Use of a Mobile App for Reporting Adverse Drug Reactions and Receiving Safety Information: A Qualitative Study.Data philanthropy and the design of the infraethics for information societies.Parents' experiences of living with, and caring for children, adolescents and young adults with Mucopolysaccharidosis (MPS).The Role of Solidarity(-ies) in Rare Diseases Research.Legal issues in governing genetic biobanks: the Italian framework as a case study for the implications for citizen's health through public-private initiatives.The Precision Medicine Nation.Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues
P2860
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P2860
description
2014 nî lūn-bûn
@nan
2014 թուականի Յունիսին հրատարակուած գիտական յօդուած
@hyw
2014 թվականի հունիսին հրատարակված գիտական հոդված
@hy
2014年の論文
@ja
2014年学术文章
@wuu
2014年学术文章
@zh-cn
2014年学术文章
@zh-hans
2014年学术文章
@zh-my
2014年学术文章
@zh-sg
2014年學術文章
@yue
name
Rare disease research: Breaking the privacy barrier
@ast
Rare disease research: Breaking the privacy barrier
@en
Rare disease research: Breaking the privacy barrier
@nl
type
label
Rare disease research: Breaking the privacy barrier
@ast
Rare disease research: Breaking the privacy barrier
@en
Rare disease research: Breaking the privacy barrier
@nl
prefLabel
Rare disease research: Breaking the privacy barrier
@ast
Rare disease research: Breaking the privacy barrier
@en
Rare disease research: Breaking the privacy barrier
@nl
P2860
P3181
P1476
Rare disease research: Breaking the privacy barrier
@en
P2093
Angelo Paradiso
Matts Hansson
P2860
P3181
P356
10.1016/J.ATG.2014.04.003
P407
P577
2014-06-01T00:00:00Z