Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application - Wikidata - awgldk - TriplyDB

Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application

Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application

http://www.wikidata.org/entity/Q24811333

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Suggested guidelines for the diagnosis and management of urea cycle disorders Feasibility of using a handheld electronic device for the collection of patient reported outcomes data from children.Rare inborn errors of metabolism with movement disorders: a case study to evaluate the impact upon quality of life and adaptive functioning Health-related quality of life assessment in Indonesian childhood acute lymphoblastic leukemia Health-related quality of life in children with newly diagnosed immune thrombocytopenia Applying an extended theoretical framework for data collection mode to health services research.Aggressive treatment of non-metastatic osteosarcoma improves health-related quality of life in children and adolescents.Parent and family stress factors predict health-related quality in pediatric patients with new-onset epilepsy.Childhood chronic conditions and health-related quality of life: Findings from a large population-based study.Quality of life in paediatric eosinophilic oesophagitis: what is important to patients?Use of pedometers to increase physical activity among children and adolescents with chronic kidney disease Associations between leisure-time physical activity and health-related quality of life among adolescent and adult survivors of childhood cancers Psychometric properties of the Brazilian version of the Early Childhood Oral Health Impact Scale (B-ECOHIS).Development of the EQ-5D-Y: a child-friendly version of the EQ-5D Developing item banks for measuring pediatric generic health-related quality of life: an application of the International Classification of Functioning, Disability and Health for Children and Youth and item response theory Reliability, construct and criterion validity of the KIDSCREEN-10 score: a short measure for children and adolescents' well-being and health-related quality of life.Quality of life in pediatric asthma patients and their parents: a meta-analysis on 20 years of research.Feasibility, acceptability, and predictive validity of a psychosocial screening program for children and youth newly diagnosed with type 1 diabetes.Construct validity and impact of mode of administration of the PedsQL™ among a pediatric injury population.Profile of subjective quality of life and its correlates in a nation-wide sample of high school students in an Arab setting using the WHOQOL-Bref.Health-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy.Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study.Measuring and valuing health-related quality of life among children and adolescents in mainland China--a pilot study Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy, and health care professional-proxy reports.Quality of life in children with adverse drug reactions: a narrative and systematic review.Differential item functioning in quality of life measure between children with and without special health-care needs.Italian translation, cultural adaptation and validation of the PedsQL™ 3.0 Diabetes Module questionnaire in children with type 1 diabetes and their parents.Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL 4.0 Generic Core Scales.How young can children reliably and validly self-report their health-related quality of life?: an analysis of 8,591 children across age subgroups with the PedsQL 4.0 Generic Core Scales.The PedsQL as a patient-reported outcome in children and adolescents with fibromyalgia: an analysis of OMERACT domains.The HEAR-QL: quality of life questionnaire for children with hearing loss Living with muscular dystrophy: health related quality of life consequences for children and adults Development of six PROMIS pediatrics proxy-report item banks Congruence of reproductive concerns among adolescents with cancer and parents: pilot testing an adapted instrument.Pedometer-assessed physical activity in children and young adults with CKD Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales.Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients' and Parents' Perspectives Validation of Persian Version of PedsQL™ 4.0™ Generic Core Scales in Toddlers and Children.Development and pilot test of the shriners pediatric instrument for neuromuscular scoliosis (SPNS): a quality of life questionnaire for children with spinal cord injuries.Psychometric properties of the Specific Thalassemia Quality of Life Instrument for adults

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P2860

Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application

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Health and Quality of Life Outcomes

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James W Varni

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Health-related quality of life as a predictor of pediatric healthcare costs: a two-year prospective cohort analysis

The Varni/Thompson Pediatric Pain Questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis

Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness.

Using subjective health assessments in practice and policy-making.

The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review.

Symptoms and suffering at the end of life in children with cancer.

Provision of feedback on perceived health status to health care professionals: a systematic review of its impact.

Routinely administered questionnaires for depression and anxiety: systematic review

AUDIO AND VIDEO COMPUTER-ASSISTED SELF INTERVIEWING: Preliminary Tests of New Technologies for Data Collection.

What is a successful doctor-patient interview? A study of interactions and outcomes.

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quality of life

biomedical investigative technique

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