Informed consent process for patient participation in rare disease registries linked to biorepositories
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Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translationalA methodology for a minimum data set for rare diseases to support national centers of excellence for healthcare and research.Facilitating enrollment in a Cancer Registry through modified consent procedures: a pilot study.Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review.
P2860
Informed consent process for patient participation in rare disease registries linked to biorepositories
description
2012 nî lūn-bûn
@nan
2012 թուականի Յունուարին հրատարակուած գիտական յօդուած
@hyw
2012 թվականի հունվարին հրատարակված գիտական հոդված
@hy
2012年の論文
@ja
2012年論文
@yue
2012年論文
@zh-hant
2012年論文
@zh-hk
2012年論文
@zh-mo
2012年論文
@zh-tw
2012年论文
@wuu
name
Informed consent process for p ...... ries linked to biorepositories
@ast
Informed consent process for p ...... ries linked to biorepositories
@en
Informed consent process for p ...... ries linked to biorepositories
@nl
type
label
Informed consent process for p ...... ries linked to biorepositories
@ast
Informed consent process for p ...... ries linked to biorepositories
@en
Informed consent process for p ...... ries linked to biorepositories
@nl
prefLabel
Informed consent process for p ...... ries linked to biorepositories
@ast
Informed consent process for p ...... ries linked to biorepositories
@en
Informed consent process for p ...... ries linked to biorepositories
@nl
P2093
P921
P1476
Informed consent process for p ...... ries linked to biorepositories
@en
P2093
Barbara Karp
Geraldine B. Pollen
Jack Schwartz
Julie Kaneshiro
Nicole C. Lockhart
Patricia A. Marshall
Richard T. Moxley
Sara Hull Chandros
Stephen C. Groft
Vanessa Rangel Miller
P356
10.1016/J.CCT.2011.10.004
P407
P577
2012-01-01T00:00:00Z