Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme - Wikidata - awgldk - TriplyDB

Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme

Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme

http://www.wikidata.org/entity/Q28584469

about

Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies "That is why I have trust": unpacking what 'trust' means to participants in international genetic research in Pakistan and Denmark.Anticipating health innovations in 2030-2040: Where does responsibility lie for the publics?Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens' Juries.Factors influencing the willingness to participate in medical research: a nationwide survey in Taiwan.Public engagement pathways for emerging GM insect technologies Where is the human in the data? A guide to ethical data use

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P2860

Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme

http://www.wikidata.org/entity/Q28584469

description

2016 nî lūn-bûn

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2016 թուականի Հոկտեմբերին հրատարակուած գիտական յօդուած

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2016 թվականի հոտեմբերին հրատարակված գիտական հոդված

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2016年の論文

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2016年論文

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2016年論文

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2016年論文

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2016年論文

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2016年論文

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Moving from trust to trustwort ...... h Health Informatics Programme

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Moving from trust to trustwort ...... h Health Informatics Programme

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Moving from trust to trustwort ...... h Health Informatics Programme

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Moving from trust to trustwort ...... h Health Informatics Programme

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Moving from trust to trustwort ...... h Health Informatics Programme

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Moving from trust to trustwort ...... h Health Informatics Programme

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Science and Public Policy

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Moving from trust to trustwort ...... h Health Informatics Programme

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P2860

DNA data sharing: research participants' perspectives

Attitudes of the Japanese public and doctors towards use of archived information and samples without informed consent: preliminary findings based on focus group interviews

"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.

Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

Genomic research and wide data sharing: views of prospective participants

Tackling community concerns about commercialisation and genetic research: A modest interdisciplinary proposal

Public engagement as a means of restoring public trust in science--hitting the notes, but missing the music?

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.

Acceptability and perceived barriers and facilitators to creating a national research register to enable 'direct to patient' enrolment into research: the Scottish Health Research Register (SHARE).

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713-723

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scholarly article

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2597510

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10.1093/SCIPOL/SCV075

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Claudia Pagliari

Sarah Cunningham-Burley

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Trustworthiness

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