Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)
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Attitudes of research participants and the general public towards genomic data sharing: a systematic literature reviewFacilitating a culture of responsible and effective sharing of cancer genome data'Pop-Up' Governance: developing internal governance frameworks for consortia: the example of UK10KEthical considerations of research policy for personal genome analysis: the approach of the Genome Science Project in JapanThe ethics weathervaneEpigenome data release: a participant-centered approach to privacy protectionData sharing in large research consortia: experiences and recommendations from ENGAGEData sharing policy design for consortia: challenges for sustainabilityA decision tool to guide the ethics review of a challenging breed of emerging genomic projects.Registered access: a 'Triple-A' approach.The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts."You want the right amount of oversight": interviews with data access committee members and experts on genomic data access.Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.Hypoxia-inducible factors enhance glutamate signaling in cancer cellsThe translational potential of research on the ethical, legal, and social implications of genomicsPseudonymization of patient identifiers for translational research.Living laboratory: whole-genome sequencing as a learning healthcare enterprise.TCGA2BED: extracting, extending, integrating, and querying The Cancer Genome AtlasTarget genes discovery through copy number alteration analysis in human hepatocellular carcinoma.Policy recommendations for addressing privacy challenges associated with cell-based research and interventions.Biobank Report: United Kingdom.From tissues to genomesQuestioning the limits of genomic privacy.Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium.The International Cancer Genome Consortium's evolving data-protection policies.Signal-Oriented Pathway Analyses Reveal a Signaling Complex as a Synthetic Lethal Target for p53 Mutations.qPortal: A platform for data-driven biomedical research.Streamlining review of research involving humans: Canadian models.Synonymous Somatic Variants in Human Cancer Are Not Infamous: A Plea for Full Disclosure in Databases and Publications.VAReporter: variant reporter for cancer research of massive parallel sequencing.Algorithms designed for compressed-gene-data transformation among gene banks with different references.Ethical concerns on sharing genomic data including patients' family members.South Korea: in the midst of a privacy reform centered on data sharingBest practice data life cycle approaches for the life sciencesIRIS-TCGA: An Information Retrieval and Integration System for Genomic Data of CancerThe governance structure for data access in the DIRECT consortium: an innovative medicines initiative (IMI) projectPatterns and mechanisms of structural variations in human cancerSharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences
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P2860
Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)
description
2012 nî lūn-bûn
@nan
2012 թուականին հրատարակուած գիտական յօդուած
@hyw
2012 թվականին հրատարակված գիտական հոդված
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2012年の論文
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2012年論文
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2012年論文
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2012年論文
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2012年論文
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2012年論文
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2012年论文
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name
Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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Data sharing in the post-genom ...... ccess Compliance Office (DACO)
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10.1371/JOURNAL.PCBI.1002549
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2012-01-01T00:00:00Z