Models of consent to return of incidental findings in genomic research - Wikidata - awgldk - TriplyDB

Models of consent to return of incidental findings in genomic research

Models of consent to return of incidental findings in genomic research

http://www.wikidata.org/entity/Q33934216

about

Incidental Findings with Genomic Testing: Implications for Genetic Counseling Practice Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.Rethinking the ethical approach to health information management through narration: pertinence of Ricœur's 'little ethics'Findings made in gene panel to whole genome sequencing: data, knowledge, ethics - and consequences?Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.Researchers' views on informed consent for return of secondary results in genomic research.Genomic analysis in the clinic: benefits and challenges for health care professionals and patients in Brazil Illustrative case studies in the return of exome and genome sequencing results.Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine.Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research.Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Ethical challenges in conducting clinical research in lung cancer.Sharpening the cutting edge: additional considerations for the UK debates on embryonic interventions for mitochondrial diseases.Is "incidental finding" the best term?: a study of patients' preferences Recommendations for the integration of genomics into clinical practice Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.Whole exome sequencing: a state-of-the-art approach for defining (and exploring!) genetic landscapes in pediatric nephrology.Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research."Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project.The Precision Medicine Nation.Clinical providers' experiences with returning results from genomic sequencing: an interview study.Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance Genomics, Big Data, and Broad Consent: a New Ethics Frontier for Prevention Science Informed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigators Improved ethical guidance for the return of results from psychiatric genomics research Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues

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Models of consent to return of incidental findings in genomic research

http://www.wikidata.org/entity/Q33934216

description

2014 nî lūn-bûn

@nan

2014 թուականի Յունիսին հրատարակուած գիտական յօդուած

@hyw

2014 թվականի հունիսին հրատարակված գիտական հոդված

@hy

2014年の論文

@ja

2014年論文

@yue

2014年論文

@zh-hant

2014年論文

@zh-hk

2014年論文

@zh-mo

2014年論文

@zh-tw

2014年论文

@wuu

name

Models of consent to return of incidental findings in genomic research

@ast

Models of consent to return of incidental findings in genomic research

@en

type

label

Models of consent to return of incidental findings in genomic research

@ast

Models of consent to return of incidental findings in genomic research

@en

prefLabel

Models of consent to return of incidental findings in genomic research

@ast

Models of consent to return of incidental findings in genomic research

@en

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P2860

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P1433

Hastings Center Report

P1476

Models of consent to return of incidental findings in genomic research

@en

P2093

Abby Fyer

http://www.w3.org/2001/XMLSchema#string

Cameron R Waldman

http://www.w3.org/2001/XMLSchema#string

Erik Parens

http://www.w3.org/2001/XMLSchema#string

Josue Martinez

http://www.w3.org/2001/XMLSchema#string

Robert Klitzman

http://www.w3.org/2001/XMLSchema#string

W Nicholson Price

http://www.w3.org/2001/XMLSchema#string

Wendy K Chung

http://www.w3.org/2001/XMLSchema#string

P2860

Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.

Recommendations for returning genomic incidental findings? We need to talk!

Reflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnostics

The $1,000 genome, the $100,000 analysis?

Incidental findings in genetics research using archived DNA

Do researchers have an obligation to actively look for genetic incidental findings?

Public expectations for return of results from large-cohort genetic research

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

Incidental genetic findings in randomized clinical trials: recommendations from the Genomics and Randomized Trials Network (GARNET).

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

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22-32

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scholarly article

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10.1002/HAST.328

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4

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44

http://www.w3.org/2001/XMLSchema#string

P50

Paul Stuart Appelbaum

P577

2014-06-11T00:00:00Z

http://www.w3.org/2001/XMLSchema#dateTime

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263054956

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24919982

http://www.w3.org/2001/XMLSchema#string

P921

incidental finding

informed consent

P932

4107028

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