The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
about
"Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studiesEvolving approaches to the ethical management of genomic dataEyes wide open: the personal genome project, citizen science and veracity in informed consentCurrent status, challenges, policies, and bioethics of biobanksStakeholders' perspectives on biobank-based genomic research: systematic review of the literatureReturn of individual research results and incidental findings: facing the challenges of translational scienceGene mutations responsible for primary immunodeficiency disorders: A report from the first primary immunodeficiency biobank in IranGWATCH: a web platform for automated gene association discovery analysis.Ethical, legal, and social considerations in conducting the Human Microbiome ProjectPractice variation across consent templates for biobank research. a survey of German biobanksInformed Consent in Genome-Scale Research: What Do Prospective Participants Think?The establishment of research ethics consultation services (RECS): an emerging research resourceOffering aggregate results to participants in genomic research: opportunities and challengesGenomic research and wide data sharing: views of prospective participantsExperiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in KenyaPublic expectations for return of results from large-cohort genetic researchTechnical and policy approaches to balancing patient privacy and data sharing in clinical and translational researchSharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.Simulating the contribution of a biospecimen and clinical data repository in a phase II clinical trial: A value of information analysis.Big Data in medical research and EU data protection law: challenges to the consent or anonymise approachObtaining consent for future research with induced pluripotent cells: opportunities and challenges.Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findingsGlad you asked: participants' opinions of re-consent for dbGap data submissionReturn of results: ethical and legal distinctions between research and clinical care.Only connect: personal genomics and the future of American medicine.Meeting the governance challenges of next-generation biorepository research.Inclusion of residual tissue in biobanks: opt-in or opt-out?Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working groupAn update to returning genetic research results to individuals: perspectives of the industry pharmacogenomics working group.Ethical aspects of human biobanks: a systematic review.Offering individual genetic research results: context matters.Genomic research with the newly dead: a crossroads for ethics and policyInformed consent in genomics and genetic research.Oncology patients overwhelmingly support tissue banking.You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative.Parlez-vous VUS?Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis.A trade secret model for genomic biobanking.Differences in preferences for models of consent for biobanks between Black and White women.Athlome Project Consortium: a concerted effort to discover genomic and other "omic" markers of athletic performance.
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P2860
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
description
2007 nî lūn-bûn
@nan
2007 թուականի Յունուարին հրատարակուած գիտական յօդուած
@hyw
2007 թվականի հունվարին հրատարակված գիտական հոդված
@hy
2007年の論文
@ja
2007年論文
@yue
2007年論文
@zh-hant
2007年論文
@zh-hk
2007年論文
@zh-mo
2007年論文
@zh-tw
2007年论文
@wuu
name
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@ast
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@en
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@nl
type
label
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@ast
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@en
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@nl
prefLabel
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@ast
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@en
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@nl
P921
P1476
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
@en
P304
P356
10.1146/ANNUREV.GENOM.7.080505.115721
P50
P577
2007-01-01T00:00:00Z