about
What can Duchenne Connect teach us about treating Duchenne muscular dystrophy?Online self-report data for duchenne muscular dystrophy confirms natural history and can be used to assess for therapeutic benefitsCan outcomes in Duchenne muscular dystrophy be improved by public reporting of data?Age at onset of first signs or symptoms predicts age at loss of ambulation in Duchenne and Becker Muscular Dystrophy: Data from the MD STARnet.Contemporary cardiac issues in Duchenne muscular dystrophy. Working Group of the National Heart, Lung, and Blood Institute in collaboration with Parent Project Muscular Dystrophy.Predictable and SuStainable Implementation of National Cardiovascular Registries (PASSION) infrastructure: A think tank report from Medical Device Epidemiological Network Initiative (MDEpiNet)FORWARD: A Registry and Longitudinal Clinical Database to Study Fragile X Syndrome.Development of newborn screening connect (NBS connect): a self-reported patient registry and its role in improvement of care for patients with inherited metabolic disorders.Health services received by individuals with duchenne/becker muscular dystrophy.Factors Associated With Health-Related Quality of Life in Children With Duchenne Muscular Dystrophy.Prevalence and Characteristics of Chinese Patients With Duchenne and Becker Muscular Dystrophy: A Territory Wide Collaborative Study in Hong Kong.
P2860
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P2860
description
2012 nî lūn-bûn
@nan
2012 թուականի Փետրուարին հրատարակուած գիտական յօդուած
@hyw
2012 թվականի փետրվարին հրատարակված գիտական հոդված
@hy
2012年の論文
@ja
2012年論文
@yue
2012年論文
@zh-hant
2012年論文
@zh-hk
2012年論文
@zh-mo
2012年論文
@zh-tw
2012年论文
@wuu
name
DuchenneConnect Registry Report.
@ast
DuchenneConnect Registry Report.
@en
DuchenneConnect Registry Report.
@nl
type
label
DuchenneConnect Registry Report.
@ast
DuchenneConnect Registry Report.
@en
DuchenneConnect Registry Report.
@nl
prefLabel
DuchenneConnect Registry Report.
@ast
DuchenneConnect Registry Report.
@en
DuchenneConnect Registry Report.
@nl
P356
P1433
P1476
DuchenneConnect Registry Report.
@en
P2093
Holly L Peay
Vanessa Rangel
P2860
P304
P356
10.1371/CURRENTS.RRN1309
P50
P577
2012-02-29T00:00:00Z