Practical implementation issues and challenges for biobanks in the return of individual research results.
about
Evolving approaches to the ethical management of genomic dataPractical guidance on informed consent for pediatric participants in a biorepositoryPatient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing.Returning individual research results for genome sequences of pancreatic cancer.Engaging Study Participants in Research Dissemination at a Center for Population Health and Health Disparities.Returning findings within longitudinal cohort studies: the 1958 birth cohort as an exemplar.Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity projectNeglected ethical issues in biobank management: Results from a U.S. studyAn update to returning genetic research results to individuals: perspectives of the industry pharmacogenomics working group.Communicating with biobank participants: preferences for receiving and providing updates to researchersAn implementation framework for the feedback of individual research results and incidental findings in researchManaging the Ethical Issues of Genomic Research using Pathology Specimens.Family decision maker perspectives on the return of genetic results in biobanking researchReturning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Participant views on consent in cancer genetics research: preparing for the precision medicine era.Return of research results from genomic biobanks: cost mattersCharacterizing biobank organizations in the U.S.: results from a national surveyReturn of results in translational iPS cell research: considerations for donor informed consent.Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in BiobankingUse of human specimens in research: the evolving United States regulatory, policy, and scientific landscape.Biobanks containing clinical specimens: defining characteristics, policies, and practices.A Systematic Review of the Management of Incidental Findings in Genomic Research.Disclosure of individual pharmacogenomic results in research projects: when and what kind of information to return to research participants.Incidental findings: the time is not yet ripe for a policy for biobanksConfidentiality in Biobanking Research: A Comparison of Donor and Nondonor Families' Understanding of Risks.A role for research ethics committees in exchanges of human biospecimens through material transfer agreements.Population studies: return of research results and incidental findings Policy Statement.Communication of results and disclosure of incidental findings in longitudinal paediatric research.Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.The Perspectives of Haematological Cancer Patients on Tissue Banking.Informed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigators
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P2860
Practical implementation issues and challenges for biobanks in the return of individual research results.
description
2012 nî lūn-bûn
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2012年の論文
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2012年論文
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2012年論文
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2012年論文
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2012年論文
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2012年論文
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2012年论文
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2012年论文
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2012年论文
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name
Practical implementation issue ...... f individual research results.
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Practical implementation issue ...... f individual research results.
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type
label
Practical implementation issue ...... f individual research results.
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Practical implementation issue ...... f individual research results.
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Practical implementation issue ...... f individual research results.
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Practical implementation issue ...... f individual research results.
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P2093
P2860
P356
P1433
P1476
Practical implementation issue ...... f individual research results.
@en
P2093
Brian J Clark
Marianna J Bledsoe
Nikolajs Zeps
William E Grizzle
P2860
P2888
P304
P356
10.1038/GIM.2011.67
P407
P577
2012-02-09T00:00:00Z