Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups
about
Experiences of caregivers of children with inherited metabolic diseases: a qualitative study.Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation.Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents.Development and Psychometric Evaluation of the MetabQoL 1.0: A Quality of Life Questionnaire for Paediatric Patients with Intoxication-Type Inborn Errors of Metabolism.Caregiver Quality of Life with Tyrosinemia Type 1.Diagnosis of rare diseases under focus: impacts for Canadian patients.
P2860
Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups
description
2015 nî lūn-bûn
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2015年の論文
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2015年学术文章
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2015年学术文章
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2015年学术文章
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2015年学术文章
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2015年学术文章
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2015年學術文章
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2015年學術文章
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2015年學術文章
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name
Child and family experiences w ...... resentatives of patient groups
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Child and family experiences w ...... resentatives of patient groups
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type
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Child and family experiences w ...... resentatives of patient groups
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Child and family experiences w ...... resentatives of patient groups
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Child and family experiences w ...... resentatives of patient groups
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Child and family experiences w ...... resentatives of patient groups
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P2093
P2860
P50
P1476
Child and family experiences w ...... resentatives of patient groups
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P2093
Anne-Marie Laberge
Beth K Potter
Brenda J Wilson
Canadian Inherited Metabolic Diseases Research Network (CIMDRN)
Chitra Prasad
Fiona A Miller
Jonathan B Kronick
Kathy N Speechley
Komudi Siriwardena
Kumanan Wilson
P2860
P2888
P304
P356
10.1007/S10545-015-9881-1
P577
2015-07-25T00:00:00Z