Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis.

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A Qualitative Study to Explore the Views and Attitudes towards Prenatal Testing in Adults Who Have Muenke Syndrome and their Partners.Depression and post-traumatic stress disorder in individuals with hereditary hemorrhagic telangiectasia: A cross-sectional survey.

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P2860

Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis.

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2015 nî lūn-bûn

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2015年の論文

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2015年学术文章

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2015年学术文章

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2015年学术文章

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2015年学术文章

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Life experiences of individual ...... amily: a qualitative analysis.

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Life experiences of individual ...... amily: a qualitative analysis.

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Life experiences of individual ...... amily: a qualitative analysis.

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Life experiences of individual ...... amily: a qualitative analysis.

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Life experiences of individual ...... amily: a qualitative analysis.

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Life experiences of individual ...... amily: a qualitative analysis.

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Life experiences of individual ...... family: a qualitative analysis

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Erin Rothwell

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Jamie McDonald

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Leigh Ann Higa

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P2860

Hereditary hemorrhagic telangiectasia: an overview of diagnosis, management, and pathogenesis

BRCA mutation-negative women from hereditary breast and ovarian cancer families: a qualitative study of the BRCA-negative experience

Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis.

Diagnostic criteria for hereditary hemorrhagic telangiectasia (Rendu-Osler-Weber syndrome).

Stigma of visible and invisible chronic conditions.

Whatever happened to qualitative description?

Disclosure of Positive BRCA1/2-Mutation Status in Young Couples: The Journey From Uncertainty to Bonding Through Partner Support

How do partners find out about the risk of Huntington's disease in couple relationships?

"In sickness and in health"? Disclosures of genetic risks in dating.

Why is genetic screening for autosomal dominant disorders underused in families? The case of hereditary hemorrhagic telangiectasia.

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s12687-015-0254-0

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81-89

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scholarly article

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10.1007/S12687-015-0254-0

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Deborah Himes

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2015-09-04T00:00:00Z

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281540835

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26340858

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hereditary hemorrhagic telangiectasia

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4715812

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Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis.

about

P2860

P2860

Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis.

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