Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. - Wikidata - awgldk - TriplyDB

Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research.

Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research.

http://www.wikidata.org/entity/Q36674705

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Patients, care partners, and shared access to the patient portal: online practices at an integrated health system Characteristics of pivotal trials and FDA review of innovative devices Ethical and logistical considerations of multicenter parental bereavement research Recruitment challenges in clinical research including cancer patients and their caregivers. A randomized controlled trial study and lessons learned.Effects of problem solving therapy on mental health outcomes in family caregivers of persons with a new diagnosis of mild cognitive impairment or early dementia: a randomized controlled trial.Self-perceived symptoms and care needs of patients with severe to very severe chronic obstructive pulmonary disease, congestive heart failure or chronic renal failure and its consequences for their closest relatives: the research protocol.Making the most of routine data in palliative care research--a case study analysis of linked hospital and mortality data on cancer and heart failure patients in Scotland and Oxford.Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory.Evaluation of a complex intervention to improve activities of daily living of disabled cancer patients: protocol for a randomised controlled study and feasibility of recruitment and intervention Caregiver experience during advanced chronic illness and last year of life Experiences and challenges of informal caregiving for Korean immigrants.Challenges and strategies of dyad research: cardiovascular examples A systematic review of the effect of retention methods in population-based cohort studies.Factors affecting recruitment and participation of bereaved parents and siblings in grief research.Subject Recruitment and Retention against Quadruple Challenges in an Intervention Trial of End-of-Life Communication Rating general practitioner consultation performance in cancer care: does the specialty of assessors matter? A simulated patient study A study to improve communication between clinicians and patients with advanced heart failure: methods and challenges behind the working to improve discussions about defibrillator management trial.A theory-based online hip fracture resource center for caregivers: effects on dyads.Pairing Self-Management with Palliative Care: Intervening in Life-Limiting Illness.Which domains of spirituality are associated with anxiety and depression in patients with advanced illness?Care of the human spirit and the role of dignity therapy: a systematic review of dignity therapy research.Early Versus Delayed Initiation of Concurrent Palliative Oncology Care: Patient Outcomes in the ENABLE III Randomized Controlled Trial.Evaluating the effects of mindfulness-based interventions for informal palliative caregivers: A systematic literature review.Te Pākeketanga: living and dying in advanced age--a study protocol.Prospective Cohort Study of Hospital Palliative Care Teams for Inpatients With Advanced Cancer: Earlier Consultation Is Associated With Larger Cost-Saving Effect.Compassion and vigilance: investigators' strategies to manage ethical concerns in palliative and end-of-life research Strategies to retain participants in a long-term HIV prevention randomized controlled trial: lessons from the MINTS-II study.Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers The broad spectrum of unbearable suffering in end-of-life cancer studied in dutch primary care.Correlations between disease-specific and generic health status questionnaires in patients with advanced COPD: a one-year observational study.Attrition rates, reasons, and predictive factors in supportive care and palliative oncology clinical trials A national observational study of the prevalence and use of enteral tube feeding, parenteral nutrition and intravenous glucose in cancer patients enrolled in specialized palliative care.Recruitment of Older Adult Patient-Caregiver Dyads for an Online Caregiver Resource Program: Lessons Learned.Comparing three life-limiting diseases: does diagnosis matter or is sick, sick?Discordance between patient-predicted and model-predicted life expectancy among ambulatory patients with heart failure.The project ENABLE II randomized controlled trial to improve palliative care for rural patients with advanced cancer: baseline findings, methodological challenges, and solutions.Caregivers for people with end-stage lung disease: characteristics and unmet needs in the whole population.Clergy-laity support and patients' mood during serious illness: a cross-sectional epidemiologic study.Factors affecting recruitment to an observational multicentre palliative care study Admission to the intensive care unit and well-being in patients with advanced chronic illness

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P2860

Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research.

http://www.wikidata.org/entity/Q36674705

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Palliative Medicine

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Elizabeth C Clipp

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James A Tulsky

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Jennifer Hoff Lindquist

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Judith C Hays

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Karen E Steinhauser

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Maren Olsen

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Nicholas A Christakis

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Robert Arnold

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P2860

Informal Costs of Dementia Care: Estimates From the National Longitudinal Caregiver Study

Quality of life in a randomized trial of group psychosocial support in metastatic breast cancer: overall effects of the intervention and an exploration of missing data.

Why are trials in palliative care so difficult?

Evaluating the quality of dying and death.

End-of-life care. National Institutes of Health statement on the state of the science.

It just didn't work: the realities of quality assessment in the English health care context.

Methodologic issues in effectiveness research on palliative cancer care: a systematic review.

Problems recruiting cancer patients to a comparative clinical trial of drug treatments for neuropathic pain in palliative care.

Medication use among black and white caregivers of older male veterans with dementia.

Issues and dilemmas in conducting research with vulnerable home hospice participants.

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