Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): case definition in surveillance for childhood-onset Duchenne/Becker muscular dystrophy.
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Online self-report data for duchenne muscular dystrophy confirms natural history and can be used to assess for therapeutic benefitsCan outcomes in Duchenne muscular dystrophy be improved by public reporting of data?Neurobehavioral Concerns Among Males with Dystrophinopathy Using Population-Based Surveillance Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network.Age at onset of first signs or symptoms predicts age at loss of ambulation in Duchenne and Becker Muscular Dystrophy: Data from the MD STARnet.Genitourinary health in a population-based cohort of males with Duchenne and Becker Muscular dystrophiesCorticosteroid Treatments in Males With Duchenne Muscular Dystrophy: Treatment Duration and Time to Loss of Ambulation.Complementary and alternative medicine for Duchenne and Becker muscular dystrophies: characteristics of users and caregiversPrevalence of Duchenne and Becker muscular dystrophies in the United States.Serum Levels of MicroRNA-206 and Novel Mini-STR Assays for Carrier Detection in Duchenne Muscular Dystrophy.Fast detection of deletion breakpoints using quantitative PCRCorticosteroid Treatment and Growth Patterns in Ambulatory Males with Duchenne Muscular Dystrophy.Prevalence and Genetic Profile of Duchene and Becker Muscular Dystrophy in Puerto RicoPerceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources.Application of the International Classification of Functioning, Disability and Health system to symptoms of the Duchenne and Becker muscular dystrophies.Delayed onset of ambulation in boys with Duchenne muscular dystrophy: Potential use as an endpoint in clinical trials.Associations between timing of corticosteroid treatment initiation and clinical outcomes in Duchenne muscular dystrophy.Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy.Rehabilitative technology use among individuals with Duchenne/Becker muscular dystrophy.Non-Invasive Biomarkers for Duchenne Muscular Dystrophy and Carrier Detection.Health services received by individuals with duchenne/becker muscular dystrophy.Public health science agenda for congenital heart defects: report from a Centers for Disease Control and Prevention experts meeting.Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy.Immunodetection analysis of muscular dystrophies in Mexico.Reproductive patterns among mothers of males diagnosed with Duchenne or Becker muscular dystrophy.Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences S
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P2860
Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): case definition in surveillance for childhood-onset Duchenne/Becker muscular dystrophy.
description
2010 nî lūn-bûn
@nan
2010年の論文
@ja
2010年論文
@yue
2010年論文
@zh-hant
2010年論文
@zh-hk
2010年論文
@zh-mo
2010年論文
@zh-tw
2010年论文
@wuu
2010年论文
@zh
2010年论文
@zh-cn
name
Muscular Dystrophy Surveillanc ...... nne/Becker muscular dystrophy.
@en
type
label
Muscular Dystrophy Surveillanc ...... nne/Becker muscular dystrophy.
@en
prefLabel
Muscular Dystrophy Surveillanc ...... nne/Becker muscular dystrophy.
@en
P2093
P2860
P356
P1476
Muscular Dystrophy Surveillanc ...... nne/Becker muscular dystrophy.
@en
P2093
Charlotte Druschel
Chris Cunniff
Dennis Matthews
Emma Ciafaloni
F John Meaney
Jiji R Kantamneni
John Sladky
Lisa Miller
Timothy Miller
Valerie Cwik
P2860
P304
P356
10.1177/0883073810371001
P577
2010-09-01T00:00:00Z