Adaptation to living with a genetic condition or risk: a mini-review
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Development and preliminary testing of the psychosocial adjustment to hereditary diseases scale.Parents' and children's communication about genetic risk: a qualitative study, learning from families' experiences.Parents' perceptions of the usefulness of chromosomal microarray analysis for children with autism spectrum disorders"What does it mean?": uncertainties in understanding results of chromosomal microarray testing.The impact of familial environment on depression scores after genetic testing for cancer susceptibility.Mothers' psychological adaptation to Duchenne/Becker muscular dystrophy.Development and validation of the Psychological Adaptation Scale (PAS): use in six studies of adaptation to a health condition or risk.Presenting life with cystic fibrosis: a Q-methodological approach to developing balanced, experience-based prenatal screening information.Pre-symptomatic genetic testing for inherited cardiac conditions: a qualitative exploration of psychosocial and ethical implications.Factors associated with adaptation to Klinefelter syndrome: the experience of adolescents and adults.Communicating microarray results of uncertain clinical significance in consultation summary letters and implications for practice.Living with an inborn error of metabolism detected by newborn screening-parents' perspectives on child development and impact on family life.Parents' communication with siblings of children affected by an inherited genetic condition.Factors Associated with Parental Adaptation to Children with an Undiagnosed Medical ConditionHealthcare Coordination and Transition for Individuals with Genetic Conditions.A novel mutation in NIPBL in a case of Cornelia de Lange syndrome confirmed with genetic testing following intrauterine fetal death. [Corrected]."My Plate is Full": Reasons for Declining a Genetic Evaluation of Hearing Loss.Adaptation of couples living with a high risk of breast/ovarian cancer and the association with risk-reducing surgery.Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention.Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer.Mothers' appreciation of chromosomal microarray analysis for autism spectrum disorder.Response to Ingleton C & Green E (2010) Commentary on Metcalfe A, Pumphrey R & Clifford C (2009) Hospice nurses' and genetics: implications for end-of-life care. Journal of Clinical Nursing 19, 192-207.Extended family impact of genetic testing: the experiences of X-linked carrier grandmothers.Quality of life in patients with hereditary hemorrhagic telangiectasia in Norway: a population based study.Quality of life in rare genetic conditions: a systematic review of the literature.Genetic Counselling: Psychological IssuesThe counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters
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Adaptation to living with a genetic condition or risk: a mini-review
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on 24 September 2008
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Adaptation to living with a genetic condition or risk: a mini-review
@en
Adaptation to living with a genetic condition or risk: a mini-review.
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type
label
Adaptation to living with a genetic condition or risk: a mini-review
@en
Adaptation to living with a genetic condition or risk: a mini-review.
@nl
prefLabel
Adaptation to living with a genetic condition or risk: a mini-review
@en
Adaptation to living with a genetic condition or risk: a mini-review.
@nl
P2860
P1433
P1476
Adaptation to living with a genetic condition or risk: a mini-review
@en
P2093
P2860
P304
P356
10.1111/J.1399-0004.2008.01088.X
P577
2008-09-24T00:00:00Z