Supporting Parental Decisions About Genomic Sequencing for Newborn Screening: The NC NEXUS Decision Aid.
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A New Framework and Prototype Solution for Clinical Decision Support and Research in Genomics and Other Data-intensive Fields of MedicineNewborn Sequencing in Genomic Medicine and Public Health.A Review on Spinal Muscular Atrophy: Awareness, Knowledge, and Attitudes.Parental preferences toward genomic sequencing for non-medically actionable conditions in children: a discrete-choice experiment.A next-generation newborn screening pilot study: NGS on dried blood spots detects causal mutations in patients with inherited metabolic diseases.DECIDE: a Decision Support Tool to Facilitate Parents' Choices Regarding Genome-Wide Sequencing.Evaluating parents' decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: a randomized controlled trial protocol.The Genomics ADvISER: development and usability testing of a decision aid for the selection of incidental sequencing results
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Supporting Parental Decisions About Genomic Sequencing for Newborn Screening: The NC NEXUS Decision Aid.
description
2016 թվականի հունվարին հրատարակված գիտական հոդված
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article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on January 2016
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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name
Supporting Parental Decisions ...... ng: The NC NEXUS Decision Aid.
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Supporting Parental Decisions ...... ng: The NC NEXUS Decision Aid.
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type
label
Supporting Parental Decisions ...... ng: The NC NEXUS Decision Aid.
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Supporting Parental Decisions ...... ng: The NC NEXUS Decision Aid.
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prefLabel
Supporting Parental Decisions ...... ng: The NC NEXUS Decision Aid.
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Supporting Parental Decisions ...... ng: The NC NEXUS Decision Aid.
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Supporting Parental Decisions ...... ng: The NC NEXUS Decision Aid.
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Cynthia M Powell
Donald B Bailey
Jonathan S Berg
Megan A Lewis
Myra I Roche
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P304
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10.1542/PEDS.2015-3731E
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P478
137 Suppl 1
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2016-01-01T00:00:00Z