Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease.
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Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD studyIn their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study.Genetic discrimination and life insurance: a systematic review of the evidence.What's at stake? Genetic information from the perspective of people with epilepsy and their family members.Ethics of genetic and biomarker test disclosures in neurodegenerative disease prevention trialsUnravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts.Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors.Civilian and military genetics: nondiscrimination policy in a post-GINA world.Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey.Factors associated with experiences of genetic discrimination among individuals at risk for Huntington disease.Early Detection of Huntington Disease.Global trends on fears and concerns of genetic discrimination: a systematic literature review.Recommendations for the predictive genetic test in Huntington's disease.Adoption and the communication of genetic risk: experiences in Huntington disease.When they hear what we say: ethical challenges in presenting research findings to the Huntington disease community.Beyond the patient: the broader impact of genetic discrimination among individuals at risk of Huntington disease.The Effect of Predictive Testing in Adult-Onset Neurodegenerative Diseases on Social and Personal Life.Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium.
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Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease.
description
article científic
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article scientifique
@fr
articolo scientifico
@it
artigo científico
@pt
bilimsel makale
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scientific article published on 24 October 2007
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Engagement with genetic discri ...... context of Huntington disease.
@en
Engagement with genetic discri ...... context of Huntington disease.
@nl
type
label
Engagement with genetic discri ...... context of Huntington disease.
@en
Engagement with genetic discri ...... context of Huntington disease.
@nl
prefLabel
Engagement with genetic discri ...... context of Huntington disease.
@en
Engagement with genetic discri ...... context of Huntington disease.
@nl
P2093
P2860
P50
P356
P1476
Engagement with genetic discri ...... context of Huntington disease.
@en
P2093
Elizabeth Penziner
Mark Guttman
Oksana Suchowersky
Yvonne Bombard
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P2888
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P356
10.1038/SJ.EJHG.5201937
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2007-10-24T00:00:00Z