Information management in families who have a child with a genetic condition.

Information management in families who have a child with a genetic condition.

Item
http://www.wikidata.org/entity/Q37327449
"How should I tell my child?" Disclosing the diagnosis of sex chromosome aneuploidies.Sickle cell disease: an opportunity for palliative care across the life span.Parental perceptions of the outcome and meaning of normalization.The psychosocial impact of Klinefelter syndrome and factors influencing quality of life.Genetic Information-Seeking Behaviors and Knowledge among Family Members and Patients with Inherited Bone Marrow Failure Syndromes.Assessment of parental disclosure of a 22q11.2 deletion syndrome diagnosis and implications for clinicians.Reproductive Health CHOICES for Young Adults with Sickle Cell Disease or Trait: Randomized Controlled Trial Outcomes over Two Years.Evaluation of the SCKnowIQ tool and reproductive CHOICES intervention among young adults with sickle cell disease or sickle cell trait.Reproductive health choices for young adults with sickle cell disease or trait: randomized controlled trial immediate posttest effects.Continued development of the family management style framework.Chinese family management of chronic childhood conditions: a cluster analysis.Communication about Congenital Adrenal Hyperplasia: Perspective of Filipino Families.Parenting challenges in families of children with autism: a pilot study.
P2860

Information management in families who have a child with a genetic condition.

Item
http://www.wikidata.org/entity/Q37327449
description
article científic
@ca
article scientifique
@fr
articolo scientifico
@it
artigo científico
@pt
bilimsel makale
@tr
scientific article published on June 2009
@en
vedecký článok
@sk
vetenskaplig artikel
@sv
videnskabelig artikel
@da
vědecký článek
@cs
name
Information management in families who have a child with a genetic condition.
@en
Information management in families who have a child with a genetic condition.
@nl
type
label
Information management in families who have a child with a genetic condition.
@en
Information management in families who have a child with a genetic condition.
@nl
prefLabel
Information management in families who have a child with a genetic condition.
@en
Information management in families who have a child with a genetic condition.
@nl
P1433
P1476
P2093
P2860
P304
P31
P356
P433
P478
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P5875
P698
P932
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P1433
P1476
Information management in families who have a child with a genetic condition.
@en
P2093
P2860
P304
P31
P356
10.1016/J.PEDN.2008.07.010
P433
P478
P577
P5875
P698
P932