Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument.
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Neuro-QOL and the NIH Toolbox: implications for epilepsyPatient-reported outcome measures in pediatric epilepsy: a content analysis using World Health Organization definitionsCross-cultural adaptation and psychometric properties of the Brazilian-Portuguese version of the VSP-A (Vécu et Santé Perçue de l'Adolescent), a health-related quality of life (HRQoL) instrument for adolescents, in a healthy Brazilian populationDeveloping item banks for measuring pediatric generic health-related quality of life: an application of the International Classification of Functioning, Disability and Health for Children and Youth and item response theoryPatient Reported Outcome (PRO) assessment in epilepsy: a review of epilepsy-specific PROs according to the Food and Drug Administration (FDA) regulatory requirements.Brazilian Portuguese translation and cross-cultural adaptation of the "Caregiver Priorities and Child Health Index of Life with Disabilities" (CPCHILD) questionnaire.Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study.Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning.Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions.Outcomes in pediatric neurology: a review of conceptual issues and recommendationsThe 2010 Ronnie Mac Keith Lecture.Quality of life of adolescents and young adults born at high risk.Finding out what matters: validity of quality of life measurement in young people with ASD.Tools for assessing quality of life in epilepsy patients.Quality of life in children with cerebral palsy: implications for practice.'Participation': a systematic review of language, definitions, and constructs used in intervention research with children with disabilities.Quality of life in adolescents and young adults with CHD is not reduced: a systematic review and meta-analysis.Health-related quality of life in children with myelomeningocele: a systematic review of the literature.Comparison of 4 Pediatric Health-Related Quality-of-Life Instruments: A Study on a Medicaid Population.The Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning, Disability, and Health.The PEDALS stationary cycling intervention and health-related quality of life in children with cerebral palsy: a randomized controlled trial.Long-term outcome of intravesical oxybutynin in children with detrusor-sphincter dyssynergia: with special reference to age-dependent parameters.Validation of QUALAS-T, a health-related quality of life instrument for teenagers with spina bifida.Quality of life of adolescents born with extremely low birth weight.Development and pilot testing of a parent-reported health-related quality of life measure for children on the ketogenic diet: The KetoQoL.Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients?Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life?QUAlity of Life Assessment in Spina bifida for Adults (QUALAS-A): development and international validation of a novel health-related quality of life instrument.Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities.Predictors of quality of life in pediatric survivors of arterial ischemic stroke and cerebral sinovenous thrombosis.Longitudinal study showed that the quality of life of Finnish adolescents with cerebral palsy continued to be relatively good.The protocol for the Cannabidiol in children with refractory epileptic encephalopathy (CARE-E) study: a phase 1 dosage escalation study.Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning
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Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument.
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on August 2009
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Quality of life instruments fo ...... se the appropriate instrument.
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Quality of life instruments fo ...... se the appropriate instrument.
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type
label
Quality of life instruments fo ...... se the appropriate instrument.
@en
Quality of life instruments fo ...... se the appropriate instrument.
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prefLabel
Quality of life instruments fo ...... se the appropriate instrument.
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Quality of life instruments fo ...... se the appropriate instrument.
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P2093
P1476
Quality of life instruments fo ...... se the appropriate instrument.
@en
P2093
Elise Davis
Elizabeth Waters
Gabriel M Ronen
Michael Livingston
Peter Rosenbaum
Saroj Saigal
P304
P356
10.1111/J.1469-8749.2009.03324.X
P577
2009-08-01T00:00:00Z