Considerations and costs of disclosing study findings to research participants.
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Incidental findings found in "healthy" volunteers during imaging performed for research: current legal and ethical implicationsRecommendations for the return of research results to study participants and guardians: a report from the Children's Oncology GroupIncidental genetic findings in randomized clinical trials: recommendations from the Genomics and Randomized Trials Network (GARNET).Pharmacogenomic data sample collection and storage: ethical issues and policy approaches.When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research resultsSharing data and results with study participants: report on a survey of cultural anthropologists.Utilizing Focus Groups with Potential Participants and Their Parents: An Approach to Inform Study Design in a Large Clinical TrialParticipants' uptake of clinical trial results: a randomised experiment.Return of results: ethical and legal distinctions between research and clinical care.Receiving a summary of the results of a trial: qualitative study of participants' views.Preferences regarding genetic research results: comparing veterans and nonveterans responsesDisclosing individual genetic results to research participants.A post-trial survey to assess the impact of dissemination of results and unmasking on participants in a 13-year randomised controlled trial on age-related cataractReturning individual research results: development of a cancer genetics education and risk communication protocolAn implementation framework for the feedback of individual research results and incidental findings in researchOpinions and intentions of parents of an autistic child toward genetic research results: two typical profilesPublic perspectives on returning genetics and genomics research results.Impact of Next Generation Sequencing on the Organization and Funding of Returning Research Results: Survey of Canadian Research Ethics Boards Members.One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants.Researcher perspectives on disclosure of incidental findings in genetic research.Expanding the ethical analysis of biobanks.Funding considerations for the disclosure of genetic incidental findings in biobank research.The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.Initial experience with a group presentation of study results to research participantsEthics of future disclosure of individual risk information in a genetic cohort study: a survey of donor preferencesFeedback of research findings for vaccine trials: experiences from two malaria vaccine trials involving healthy children on the Kenyan Coast.Informing research participants of research results: analysis of Canadian university based research ethics board policiesManaging incidental findings in human subjects research: analysis and recommendations.Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national surveyOffering results to research subjects: U.S. Institutional Review Board policy.Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer.Disclosure of individual pharmacogenomic results in research projects: when and what kind of information to return to research participants.Health research participants' preferences for receiving research results.Planning for Long-Term Follow-Up: Strategies Learned from Longitudinal StudiesPriorities for autism spectrum disorder risk communication and ethics.Patient involvement in research: an audit of study feedback to participants.An Australian approach to the policy translation of deliberated citizen perspectives on biobanking.The research participant perspective related to the conduct of genomic cohort studies: A systematic review of the quantitative literature.Qualitative study of participants' perceptions and preferences regarding research dissemination.Impact on parents of receiving individualized feedback of psychological testing conducted with children as part of a research study.
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Considerations and costs of disclosing study findings to research participants.
description
article científic
@ca
article scientifique
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articolo scientifico
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artigo científico
@pt
bilimsel makale
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scientific article published on April 2004
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Considerations and costs of disclosing study findings to research participants.
@en
Considerations and costs of disclosing study findings to research participants.
@nl
type
label
Considerations and costs of disclosing study findings to research participants.
@en
Considerations and costs of disclosing study findings to research participants.
@nl
prefLabel
Considerations and costs of disclosing study findings to research participants.
@en
Considerations and costs of disclosing study findings to research participants.
@nl
P2860
P356
P1476
Considerations and costs of disclosing study findings to research participants.
@en
P2093
Conrad V Fernandez
P2860
P304
P356
10.1503/CMAJ.1031668
P407
P577
2004-04-01T00:00:00Z