Patients-in-waiting: Living between sickness and health in the genomics era.
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Genetic research on biospecimens poses minimal riskAutobiologies on YouTube: Narratives of Direct-to-Consumer Genetic TestingParsing the peanut panic: The social life of a contested food allergy epidemicOverdiagnosis, medicalisation and social justice: commentary on Carter et al (2016) 'A definition and ethical evaluation of overdiagnosis'.Technical report: Ethical and policy issues in genetic testing and screening of children.Emerging issues in public health genomics.The challenge of consent in clinical genome-wide testing.Parents' decisions to screen newborns for FMR1 gene expansions in a pilot research project.The fiduciary relationship model for managing clinical genomic "incidental" findings.What's at stake? Genetic information from the perspective of people with epilepsy and their family members.Genetic screening.Public support for neonatal screening for Pompe disease, a broad-phenotype condition."What does it mean?": uncertainties in understanding results of chromosomal microarray testing.The lifestylisation of healthcare? 'Consumer genomics' and mobile health as technologies for healthy lifestyle.Enacting the molecular imperative: How gene-environment interaction research links bodies and environments in the post-genomic ageThe Newborn Screening Paradox: Sensitivity vs. Overdiagnosis in VLCAD DeficiencyRaising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Psychological, behavioral and social effects of disclosing Alzheimer's disease biomarkers to research participants: a systematic review.The Fracture of Relational Space in Depression: Predicaments in Primary Care Help SeekingNewborn screening for lysosomal storage disorders and other neuronopathic conditions.Parental permission for pilot newborn screening research: guidelines from the NBSTRN.Screening of Newborns for Disorders with High Benefit-Risk Ratios Should Be MandatoryNewborn screening for lysosomal storage diseases: an ethical and policy analysis.Implications of newborn screening for nurses.Managing the ethical challenges of next-generation sequencing in genomic medicine.Expanded newborn screening: articulating the ontology of diseases with bridging work in the clinic.The role of experiential knowledge within attitudes towards genetic carrier screening: A comparison of people with and without experience of spinal muscular atrophy."It was a lot Tougher than I Thought It would be". A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier.Foreskin and the molecular politics of risk.Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.Newborn Screening for Lysosomal Storage Disorders.Medical technologies and the dream of the perfect newborn.Newborn screening for metabolic disorders: parental perceptions of the initial communication of results.Newborn screening for X-linked adrenoleukodystrophy: evidence summary and advisory committee recommendation.Entangled local biologies: genetic risk, bodies and inequities in Brazilian cancer genetics.The Spillover of Genomic Testing Results in Families: Same Variant, Different Logics.Reacting to genetic risk: an experimental survey of life between health and disease.Follow-up status during the first 5 years of life for metabolic disorders on the federal Recommended Uniform Screening Panel.Contesting and Differentially Constructing Uncertainty: Negotiations of Contraceptive Use in the Clinical Encounter.Genetics in the 21st Century: Implications for patients, consumers and citizens.
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Patients-in-waiting: Living between sickness and health in the genomics era.
description
article científic
@ca
article scientifique
@fr
articolo scientifico
@it
artigo científico
@pt
bilimsel makale
@tr
scientific article published on December 2010
@en
vedecký článok
@sk
vetenskaplig artikel
@sv
videnskabelig artikel
@da
vědecký článek
@cs
name
Patients-in-waiting: Living between sickness and health in the genomics era.
@en
Patients-in-waiting: Living between sickness and health in the genomics era.
@nl
type
label
Patients-in-waiting: Living between sickness and health in the genomics era.
@en
Patients-in-waiting: Living between sickness and health in the genomics era.
@nl
prefLabel
Patients-in-waiting: Living between sickness and health in the genomics era.
@en
Patients-in-waiting: Living between sickness and health in the genomics era.
@nl
P2860
P356
P1476
Patients-in-waiting: Living between sickness and health in the genomics era.
@en
P2093
Stefan Timmermans
P2860
P304
P356
10.1177/0022146510386794
P577
2010-12-01T00:00:00Z