Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
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Redefining genomic privacy: trust and empowermentElectronic health records: new opportunities for clinical researchAttitudes of research participants and the general public towards genomic data sharing: a systematic literature reviewAddressing Benefits, Risks and Consent in Next Generation Sequencing StudiesBalancing Benefits and Risks of Immortal Data: Participants' Views of Open Consent in the Personal Genome ProjectFair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in BiobankingChallenges of web-based personal genomic data sharingDynamic consent: a patient interface for twenty-first century research networksCroatian National Centre for Biobanking--a new perspective in biobanks governance?Biobanking: The Melding of Research with Clinical CarePublic Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the USPatient/family views on data sharing in rare diseases: study in the European LeukoTreat project.Big Data in medical research and EU data protection law: challenges to the consent or anonymise approachEmerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and BiobanksThe Effect of the General Data Protection Regulation on Medical Research.Bio-collections in autism research.Returning findings within longitudinal cohort studies: the 1958 birth cohort as an exemplar.Testing an online, dynamic consent portal for large population biobank research.Rare Cancers Europe (RCE) methodological recommendations for clinical studies in rare cancers: a European consensus position paper.Demographic differences in willingness to provide broad and narrow consent for biobank research.Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.Molecular Tumor Boards: Ethical Issues in the New Era of Data Medicine.A qualitative study of participants' views on re-consent in a longitudinal biobank.A critique of the regulation of data science in healthcare research in the European Union.Consent Issues in Genetic Research: Views of Research ParticipantsLessons from HeLa Cells: The Ethics and Policy of Biospecimens.Great expectations: autism spectrum disorder and induced pluripotent stem cell technologies.Legal & ethical compliance when sharing biospecimen.Ethically sustainable governance in the biobanking of eggs and embryos for research.A role for research ethics committees in exchanges of human biospecimens through material transfer agreements.Informed consent, and an ethico-legal framework for paediatric observational research and biobanking: the experience of an Italian birth cohort study.Harmonizing Global Biospecimen Consent Practices to Advance Translational Research: A Call to Action.Locating Biobanks in the Canadian Privacy Maze.Managing Human Tissue Transfer Across National Boundaries - An Approach from an Institution in South Africa.A big step for Finnish biobanking.Risks of the new EU Data Protection Regulation: an ESMO position paper endorsed by the European oncology community.A novel metadata management model to capture consent for record linkage in longitudinal research studies.Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.Participants' Accounts on Their Decision to Join a Cohort Study With an Attached Biobank: A Qualitative Content Analysis Study Within Two German Studies.Biobanking Research and Human Subjects Protections: Perspectives of IRB Leaders.
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P2860
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
description
article científic
@ca
article scientifique
@fr
articol științific
@ro
articolo scientifico
@it
artigo científico
@gl
artigo científico
@pt
artigo científico
@pt-br
artikel ilmiah
@id
artikull shkencor
@sq
artículo científico
@es
name
Broad consent versus dynamic c ...... ticipation an ethical problem?
@en
type
label
Broad consent versus dynamic c ...... ticipation an ethical problem?
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prefLabel
Broad consent versus dynamic c ...... ticipation an ethical problem?
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P2093
P2860
P921
P356
P1476
Broad consent versus dynamic c ...... ticipation an ethical problem?
@en
P2093
Berge Solberg
Bjørn Kåre Myskja
Kristin Solum Steinsbekk
P2860
P2888
P304
P356
10.1038/EJHG.2012.282
P577
2013-01-09T00:00:00Z
P5875
P6179
1029791870