Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy. - Wikidata - awgldk - TriplyDB

Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

http://www.wikidata.org/entity/Q38125499

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A systematic review to investigate the measurement properties of goal attainment scaling, towards use in drug trials.Upper extremity 3-dimensional reachable workspace analysis in dystrophinopathy using Kinect Design and pilot validation of A-gear: a novel wearable dynamic arm support Long term natural history data in ambulant boys with Duchenne muscular dystrophy: 36-month changes.Quantitative NMRI and NMRS identify augmented disease progression after loss of ambulation in forearms of boys with Duchenne muscular dystrophy.Upper Limb Evaluation in Duchenne Muscular Dystrophy: Fat-Water Quantification by MRI, Muscle Force and Function Define Endpoints for Clinical Trials Skeletal Muscle Quantitative Nuclear Magnetic Resonance Imaging and Spectroscopy as an Outcome Measure for Clinical Trials Outcome reliability in non-ambulatory boys/men with Duchenne muscular dystrophy.Upper limb strength and function changes during a one-year follow-up in non-ambulant patients with Duchenne Muscular Dystrophy: an observational multicenter trial.The 6 minute walk test and performance of upper limb in ambulant duchenne muscular dystrophy boys A Movement Monitor Based on Magneto-Inertial Sensors for Non-Ambulant Patients with Duchenne Muscular Dystrophy: A Pilot Study in Controlled Environment.Reachable workspace and performance of upper limb (PUL) in duchenne muscular dystrophy.Upper arm and cardiac magnetic resonance imaging in Duchenne muscular dystrophy.Circulating Biomarkers for Duchenne Muscular Dystrophy.Eteplirsen in the treatment of Duchenne muscular dystrophy Exon skipping: a first in class strategy for Duchenne muscular dystrophy.Development of a patient-reported outcome measure for upper limb function in Duchenne muscular dystrophy: DMD Upper Limb PROM.Revised upper limb module for spinal muscular atrophy: Development of a new module.Longitudinal functional and NMR assessment of upper limbs in Duchenne muscular dystrophy.Spinal muscular atrophy functional composite score: A functional measure in spinal muscular atrophy.Benefits of glucocorticoids in non-ambulant boys/men with Duchenne muscular dystrophy: A multicentric longitudinal study using the Performance of Upper Limb test.Improvements in motor tasks through the use of smartphone technology for individuals with Duchenne muscular dystrophy.Dynamic arm study: quantitative description of upper extremity function and activity of boys and men with duchenne muscular dystrophy.Reliability and validity of active-seated: An outcome in dystrophinopathy.Clinical trial readiness in non-ambulatory boys and men with duchenne muscular dystrophy: MDA-DMD network follow-up.Measuring what matters to rare disease patients - reflections on the work by the IRDiRC taskforce on patient-centered outcome measures.Magnetic resonance imaging of the proximal upper extremity musculature in boys with Duchenne muscular dystrophy.An Overview of Recent Therapeutics Advances for Duchenne Muscular Dystrophy.How often should sitting and rising from a chair be evaluated in patients with Duchenne muscular dystrophy?Corticosteroids in Duchenne muscular dystrophy: impact on the motor function measure sensitivity to change and implications for clinical trials.Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and neuromuscular, rehabilitation, endocrine, and gastrointestinal and nutritional management.Hand Function in Muscular Dystrophies.Update on Standard Operating Procedures in Preclinical Research for DMD and SMA Report of TREAT-NMD Alliance Workshop, Schiphol Airport, 26 April 2015, The Netherlands.Trunk, head and pelvis interactions in healthy children when performing seated daily arm tasks.Upper limb function in Duchenne muscular dystrophy: 24 month longitudinal data.Functional levels and MRI patterns of muscle involvement in upper limbs in Duchenne muscular dystrophy.Off-Label Use of Ataluren in Four Non-ambulatory Patients With Nonsense Mutation Duchenne Muscular Dystrophy: Effects on Cardiac and Pulmonary Function and Muscle Strength Rare disease registries: potential applications towards impact on development of new drug treatments

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Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

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Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

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Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

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Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

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Developmental Medicine and Child Neurology

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Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

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Anna Mayhew

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Elena S Mazzone

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Elizabeth Vroom

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Erik Henrikson

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Eugenio Mercuri

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Flaviana Bianco

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Giles Campion

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Julaine Florence

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Katrijn Klingels

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Laurent Servais

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P2860

Exon skipping and dystrophin restoration in patients with Duchenne muscular dystrophy after systemic phosphorodiamidate morpholino oligomer treatment: an open-label, phase 2, dose-escalation study

24 month longitudinal data in ambulant boys with Duchenne muscular dystrophy

Development and application of stereo camera-based upper extremity workspace evaluation in patients with neuromuscular diseases

The cooperative international neuromuscular research group Duchenne natural history study--a longitudinal investigation in the era of glucocorticoid therapy: design of protocol and the methods used.

Percent-predicted 6-minute walk distance in duchenne muscular dystrophy to account for maturational influences.

Systemic administration of PRO051 in Duchenne's muscular dystrophy.

Reliability of the North Star Ambulatory Assessment in a multicentric setting.

A critical review of functional assessment tools for upper limbs in Duchenne muscular dystrophy.

Moving towards meaningful measurement: Rasch analysis of the North Star Ambulatory Assessment in Duchenne muscular dystrophy.

International workshop on assessment of upper limb function in Duchenne Muscular Dystrophy: Rome, 15-16 February 2012.

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1038-1045

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scholarly article

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10.1111/DMCN.12213

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11

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55

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Craig M. McDonald

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2013-08-01T00:00:00Z

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23902233

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