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Return of individual genomic research results: what do consent forms tell participants?

Return of individual genomic research results: what do consent forms tell participants?

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How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study.Towards precision nephrology: the opportunities and challenges of genomic medicine.

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Return of individual genomic research results: what do consent forms tell participants?

http://www.wikidata.org/entity/Q38850043

description

2016 nî lūn-bûn

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name

Return of individual genomic research results: what do consent forms tell participants?

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Return of individual genomic research results: what do consent forms tell participants?

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Return of individual genomic research results: what do consent forms tell participants?

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European Journal of Human Genetics

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Return of individual genomic research results: what do consent forms tell participants?

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Jill Oliver Robinson

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Stacey Pereira

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Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents

Public expectations for return of results from large-cohort genetic research

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

Return of genomic results to research participants: the floor, the ceiling, and the choices in between.

Experiences and attitudes of genome investigators regarding return of individual genetic test results.

Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Disclosing individual results of clinical research: implications of respect for participants.

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

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10.1038/EJHG.2016.76

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informed consent form

informed consent

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