Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment.
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Understanding and improving health education among first-time parents of infants with sickle cell anemia in Alabama: a mixed methods approach.Young adults' pre-existing knowledge of cystic fibrosis and sickle cell diseases: implications for newborn screening.When the cystic fibrosis label does not fit: a modified uncertainty theoryDevelopmental and psychosocial issues in cystic fibrosis.Newborn screening: an appeal for improved parent education.Psychological effects of false-positive results in expanded newborn screening in China.Emerging issues in public health genomics.A tailored approach to family-centered genetic counseling for cystic fibrosis newborn screening: the Wisconsin model.Primary care providers' experiences notifying parents of cystic fibrosis newborn screening results.Genetic screening.Factors associated with parental perception of child vulnerability 12 months after abnormal newborn screening results.A qualitative secondary evaluation of statewide follow-up interviews for abnormal newborn screening results for cystic fibrosis and sickle cell hemoglobinopathyFraming optional genetic testing in the context of mandatory newborn screening tests.Factors that influence parents' experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathyMaternal Consequences of the Detection of Fragile X Carriers in Newborn ScreeningParents' responses to receiving sickle cell or cystic fibrosis carrier results for their child following newborn screeningFrequency of high-quality communication behaviors used by primary care providers of heterozygous infants after newborn screening.Improving communication between doctors and parents after newborn screeningImproving newborn screening for cystic fibrosis using next-generation sequencing technology: a technical feasibility studyPsychosocial consequences of false-positive newborn screens for cystic fibrosis.Informing parents about positive newborn screen results: parents' recommendations.Comparison of quantitative sweat chloride methods after positive newborn screen for cystic fibrosis.Impact of false-positive newborn metabolic screening results on early health care utilization.Parental knowledge reduces long term anxiety induced by false-positive test results after newborn screening for cystic fibrosis.Parental permission for pilot newborn screening research: guidelines from the NBSTRN.Newborn screening programs: should 22q11 deletion syndrome be added?Expanding newborn screening for lysosomal disorders: opportunities and challenges.Implications of newborn screening for nurses.Why Do Parents Want to Know their Child's Carrier Status? A Qualitative Study.False positive newborn screening results are not always benign.Family acceptability of school-based echocardiographic screening for rheumatic heart disease in a high-risk population in New Zealand.Parental attitudes to the identification of their infants as carriers of cystic fibrosis by newborn screening.A secondary benefit: the reproductive impact of carrier results from newborn screening for cystic fibrosis.Stressful point-of-care rapid testing for human immunodeficiency virus, hepatitis C virus, and syphilis.Finding Motivation: Online Information Seeking Following Newborn Screening for Cystic Fibrosis.Psychosocial impact on mothers receiving expanded newborn screening results.Genetic counseling following the detection of hemoglobinopathy trait on the newborn screen is well received, improves knowledge, and relieves anxiety.Psychosocial Distress and Knowledge Deficiencies in Parents of Children in Ireland Who Carry an Altered Cystic Fibrosis Gene.Prognostic tests in babies: do they always help?Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs.
P2860
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P2860
Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment.
description
2005 nî lūn-bûn
@nan
2005年の論文
@ja
2005年学术文章
@wuu
2005年学术文章
@zh-cn
2005年学术文章
@zh-hans
2005年学术文章
@zh-my
2005年学术文章
@zh-sg
2005年學術文章
@yue
2005年學術文章
@zh
2005年學術文章
@zh-hant
name
Psychosocial risk associated w ...... ng the sweat-test appointment.
@en
type
label
Psychosocial risk associated w ...... ng the sweat-test appointment.
@en
prefLabel
Psychosocial risk associated w ...... ng the sweat-test appointment.
@en
P2093
P356
P1433
P1476
Psychosocial risk associated w ...... ng the sweat-test appointment.
@en
P2093
Audrey Tluczek
Michael J Rock
Philip M Farrell
Rebecca L Koscik
P304
P356
10.1542/PEDS.2004-0275
P407
P577
2005-06-01T00:00:00Z