Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List.
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Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).Quality of life assessment in clinical practice in haemophilia treatment.Recent developments in clinimetric instruments.Intermediate-dose versus high-dose prophylaxis for severe hemophilia: comparing outcome and costs since the 1970sCurrent challenges of pharmacovigilance in bleeding disorders: converting the burden to benefit.Recommendations for assessment, monitoring and follow-up of patients with haemophilia.Management of joint bleeding in hemophilia.Prophylaxis in real life scenarios.Assessment of outcomes.Outcome measures in haemophilia: a systematic review.Various regimens for prophylactic treatment of patients with haemophilia.Assessments of outcome in haemophilia - what is the added value of QoL tools?The ICF (International Classification of Functioning, Disability and Health) developed by the WHO for measuring function in hemophilia.Outcome measures for adult and pediatric hemophilia patients with inhibitors.Choosing outcome assessment tools in haemophilia care and research: a multidisciplinary perspective.Evaluating outcome of prophylaxis in haemophilia: objective and self-reported instruments should be combined.Long-term impact of joint bleeds in von Willebrand disease: a nested case-control study.Construct validity of patient-reported outcome instruments in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study.Reliability of patient-reported outcome instruments in US adults with hemophilia: the Pain, Functional Impairment and Quality of life (P-FiQ) study.Known-group validity of patient-reported outcome instruments and hemophilia joint health score v2.1 in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study.A patient-prioritized ability assessment in haemophilia: the Canadian Occupational Performance Measure.The impairment in daily life of obese haemophiliacs.Using the Haemophilia Joint Health Score for assessment of teenagers and young adults: exploring reliability and validity.Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List (pedhal).Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List.Pain and functional limitations in patients with severe haemophilia.Coping in adult patients with severe haemophilia.Long-term outcome of multiple joint procedures in haemophilia.Self-reported prevalence, description and management of pain in adults with haemophilia: methods, demographics and results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study.The Swedish version of the Haemophilia Activity List.A case-control study assessing bone mineral density in severe haemophilia A in the UK.A Combined Ultrasonographic and Conventional Radiographic Assessment of Hemophilic Arthropathy.Psychometric analysis of the Functional Independence Score in Haemophilia (FISH).Monitoring joint health in haemophilia: Factors associated with deterioration.Joint health and functional ability in children with haemophilia who receive intensive replacement therapy.Self-reported activity and functioning in daily life; the perspective of persons with haemophilia living in Sweden.Internal consistency and item-total correlation of patient-reported outcome instruments and hemophilia joint health score v2.1 in US adult people with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study.Measuring activities and participation in persons with haemophilia: A systematic review of commonly used instruments.Impact of pain and functional impairment in US adults with haemophilia: Patient-reported outcomes and musculoskeletal evaluation in the pain, functional impairment and quality of life (P-FiQ) study.Functional limitations in Romanian children with haemophilia: further testing of psychometric properties of the Paediatric Haemophilia Activities List.
P2860
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P2860
Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List.
description
2004 nî lūn-bûn
@nan
2004年の論文
@ja
2004年学术文章
@wuu
2004年学术文章
@zh-cn
2004年学术文章
@zh-hans
2004年学术文章
@zh-my
2004年学术文章
@zh-sg
2004年學術文章
@yue
2004年學術文章
@zh
2004年學術文章
@zh-hant
name
Functional consequences of hae ...... e Haemophilia Activities List.
@en
type
label
Functional consequences of hae ...... e Haemophilia Activities List.
@en
prefLabel
Functional consequences of hae ...... e Haemophilia Activities List.
@en
P2093
P2860
P1433
P1476
Functional consequences of hae ...... he Haemophilia Activities List
@en
P2093
Helders PJ
de Kleijn P
van Genderen FR
van Meeteren NL
van den Berg HM
P2860
P304
P356
10.1111/J.1365-2516.2004.01016.X
P577
2004-09-01T00:00:00Z