Never again joy without sorrow: the effect on parents of a child with ataxia-telangiectasia.

Never again joy without sorrow: the effect on parents of a child with ataxia-telangiectasia.

Item
http://www.wikidata.org/entity/Q40786477
Genetic testing in asymptomatic minors: background considerations towards ESHG RecommendationsCan we make assumptions about the psychosocial impact of living as a carrier, based on studies assessing the effects of carrier testing?Parents' experiences with requesting carrier testing for their unaffected children.'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1."They Just Want to Know" - Genetic Health Professionals' Beliefs About Why Parents Want to Know their Child's Carrier Status.Why Do Parents Want to Know their Child's Carrier Status? A Qualitative Study.How does the mode of inheritance of a genetic condition influence families? A study of guilt, blame, stigma, and understanding of inheritance and reproductive risks in families with X-linked and autosomal recessive diseases.A qualitative study exploring genetic counsellors' experiences of counselling children.New "first families": the psychosocial impact of new genetic technologies.
P2860

Never again joy without sorrow: the effect on parents of a child with ataxia-telangiectasia.

Item
http://www.wikidata.org/entity/Q40786477
description
1999 nî lūn-bûn
@nan
1999年の論文
@ja
1999年学术文章
@wuu
1999年学术文章
@zh-cn
1999年学术文章
@zh-hans
1999年学术文章
@zh-my
1999年学术文章
@zh-sg
1999年學術文章
@yue
1999年學術文章
@zh
1999年學術文章
@zh-hant
name
Never again joy without sorrow ...... ld with ataxia-telangiectasia.
@en
type
label
Never again joy without sorrow ...... ld with ataxia-telangiectasia.
@en
prefLabel
Never again joy without sorrow ...... ld with ataxia-telangiectasia.
@en
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Never again joy without sorrow ...... ild with ataxia-telangiectasia
@en
P2093
P2860
P304
P31
P356
10.1002/(SICI)1096-8628(19991222)87:5<413::AID-AJMG8>3.0.CO;2-X
P433
P478
P50
P577
P698