Developing outcome measures for pediatric mitochondrial disorders: which complaints and limitations are most burdensome to patients and their parents?

Developing outcome measures for pediatric mitochondrial disorders: which complaints and limitations are most burdensome to patients and their parents?

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http://www.wikidata.org/entity/Q44119284
Mitochondrial disorders in children: toward development of small-molecule treatment strategiesInternational Paediatric Mitochondrial Disease ScaleLong-term Developmental Trends of Pediatric Mitochondrial Diseases: The Five Stages of Developmental DeclineSleep disordered breathing in children with mitochondrial disease.Quality of life, fatigue and mental health in patients with the m.3243A > G mutation and its correlates with genetic characteristics and disease manifestation.New treatments for mitochondrial disease-no time to drop our standards.Transition for patients with epilepsy due to metabolic and mitochondrial disorders.Domains of Daily Physical Activity in Children with Mitochondrial Disease: A 3D Accelerometry Approach.International Workshop:: Outcome measures and clinical trial readiness in primary mitochondrial myopathies in children and adults. Consensus recommendations. 16-18 November 2016, Rome, Italy.Feeding difficulties, a key feature of the Drosophila NDUFS4 mitochondrial disease model.Mitochondrial disease patient motivations and barriers to participate in clinical trials.Everyday Activities for Children with Mitochondrial Disorder: A Retrospective Chart Review.
P2860

Developing outcome measures for pediatric mitochondrial disorders: which complaints and limitations are most burdensome to patients and their parents?

Item
http://www.wikidata.org/entity/Q44119284
description
2012 nî lūn-bûn
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2012年の論文
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Developing outcome measures fo ...... to patients and their parents?
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10.1016/J.MITO.2012.11.002
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