Adolescents' transition to self-management of a chronic genetic disorder.
about
Health care transitions among youth with disabilities or special health care needs: an ecological approach.Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease.A systematic review of self-management interventions for children and youth with physical disabilities.What makes teens start using and keep using health information web sites? A mixed model analysis of teens with chronic illnessesThe Emerging Adult with Inflammatory Bowel Disease: Challenges and Recommendations for the Adult GastroenterologistTransitioning the adolescent inflammatory bowel disease patient: guidelines for the adult and pediatric gastroenterologistTransitioning adolescents and young adults with a chronic health condition to adult healthcare - an exemplar program.Self-management and skills acquisition in boys with haemophilia.The role of neuropsychological evaluation in pediatric sickle cell disease.Transition of management in adolescents with IBD.Systematic review of the psychosocial aspects of living with Marfan syndrome.A qualitative synthesis of adolescents' experiences of living with spina bifida.Psychiatric and neuropsychological issues in Marfan syndrome: A critical review of the literature.From controlling to letting go: what are the psychosocial needs of parents of adolescents with a chronic illness?Social participation of adolescents with cerebral palsy: trade-offs and choices.Exploring Transition to Self-Management Within the Culture of Sickle Cell Disease.COPING IN YOUNG PEOPLE WITH CHRONIC KIDNEY DISEASE (CKD).When independent healthcare behaviors develop in adolescents with inflammatory bowel disease.Best practices in transitioning youth with HIV: perspectives of pediatric and adult infectious disease care providers.Receiving enzyme replacement therapy for a lysosomal storage disorder: a preliminary exploration of the experiences of young patients and their families.Experience of Being Young With Psoriasis: Self-Management Support Needs.Transition to self-management after pediatric heart transplant.Disease self-management needs of adolescents with cancer: perspectives of adolescents with cancer and their parents and healthcare providers.Satisfaction with life in adults with Marfan syndrome (MFS): associations with health-related consequences of MFS, pain, fatigue, and demographic factors.Experience with genetic counseling: the adolescent perspective.Developing biographies: the experiences of children, young people and their parents of living with a long-term condition.Self-surveillance by adolescents and young adults transitioning to self-management of a chronic genetic disorder.A qualitative study of young people's perspectives of living with type 1 diabetes: do perceptions vary by levels of metabolic control?Uptake of health monitoring and disease self-management in Australian adults with neurofibromatosis type 1: strategies to improve care.The lived experiences of children and adolescents with end-stage renal disease.Comparison of the background, needs, and expectations for genetic counseling of adults with experience with Down syndrome, Marfan syndrome, and neurofibromatosis.Work participation in adults with Marfan syndrome: Demographic characteristics, MFS related health symptoms, chronic pain, and fatigue.
P2860
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P2860
Adolescents' transition to self-management of a chronic genetic disorder.
description
2008 nî lūn-bûn
@nan
2008年の論文
@ja
2008年学术文章
@wuu
2008年学术文章
@zh
2008年学术文章
@zh-cn
2008年学术文章
@zh-hans
2008年学术文章
@zh-my
2008年学术文章
@zh-sg
2008年學術文章
@yue
2008年學術文章
@zh-hant
name
Adolescents' transition to self-management of a chronic genetic disorder.
@en
Adolescents' transition to self-management of a chronic genetic disorder.
@nl
type
label
Adolescents' transition to self-management of a chronic genetic disorder.
@en
Adolescents' transition to self-management of a chronic genetic disorder.
@nl
prefLabel
Adolescents' transition to self-management of a chronic genetic disorder.
@en
Adolescents' transition to self-management of a chronic genetic disorder.
@nl
P2093
P2860
P356
P1476
Adolescents' transition to self-management of a chronic genetic disorder.
@en
P2093
Ellen Giarelli
Reed E Pyeritz
P2860
P304
P356
10.1177/1049732308314853
P577
2008-04-01T00:00:00Z