Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia.
about
Routine provision of information on patient-reported outcome measures to healthcare providers and patients in clinical practiceCombination of qualitative and quantitative methods for developing a new Health Related Quality of Life measure for patients with anogenital warts.Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.Psychometric properties of the Greek Haem-A-QoL for measuring quality of life in Greek haemophilia patients.Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).Disease-specific quality-of-life measurement tools for haemophilia patients.Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project.Quality of life and sports activities in patients with haemophilia.Patient involvement in the development of patient-reported outcome measures: a scoping review.Recommendations for assessment, monitoring and follow-up of patients with haemophilia.Development of a new instrument for the assessment of psychological predictors of well-being and quality of life in people with HIV or AIDS.Meeting the challenges of haemophilia care and patient support in China and Brazil.Development and psychometric testing of the Hemophilia Well-being Index.Assessment of outcomes.Outcome measures in haemophilia: a systematic review.Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents.Assessments of outcome in haemophilia - what is the added value of QoL tools?Outcome measures for adult and pediatric hemophilia patients with inhibitors.Social determinants and health-related dimensions of quality of life in adult patients with haemophilia.Health-Related Quality of Life and Association With Arthropathy in Greek Patients with Hemophilia.Health-related quality of life in chronic coagulation disorders.Quality of life in haemophilia.Quality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va).Psychometric field study of the new haemophilia quality of life questionnaire for adults: the 'Hemofilia-QoL'.The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia.
P2860
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P2860
Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia.
description
2004 nî lūn-bûn
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2004年の論文
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2004年学术文章
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2004年学术文章
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2004年学术文章
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2004年学术文章
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2004年学术文章
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2004年學術文章
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name
Development of a new disease-s ...... dults living with haemophilia.
@en
Development of a new disease-s ...... dults living with haemophilia.
@nl
type
label
Development of a new disease-s ...... dults living with haemophilia.
@en
Development of a new disease-s ...... dults living with haemophilia.
@nl
prefLabel
Development of a new disease-s ...... dults living with haemophilia.
@en
Development of a new disease-s ...... dults living with haemophilia.
@nl
P2093
P2860
P921
P1433
P1476
Development of a new disease-s ...... dults living with haemophilia.
@en
P2093
A Ugarriza
C Altisent
E Martínez
F Hernández-Navarro
Hemofilia-QoL Group
P2860
P304
P356
10.1111/J.1365-2516.2004.00918.X
P50
P577
2004-07-01T00:00:00Z