about
Severe loss of appetite in amyotrophic lateral sclerosis patients: online self-assessment studyPatient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMeALS patients request more information about cognitive symptomsAbsence of cognitive, behavioral, or emotional dysfunction in progressive muscular atrophyQuality of life in organ transplant recipients participating in an online transplant communitySubjects no more: what happens when trial participants realize they hold the power?Sharing health data for better outcomes on PatientsLikeMePatient assessment of physician performance of epilepsy quality-of-care measuresPatientsLikeMe: Consumer health vocabulary as a folksonomyExploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient LevelAccelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm.Perceived benefits of sharing health data between people with epilepsy on an online platform.Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ).The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community.Mining online social network data for biomedical research: a comparison of clinicians' and patients' perceptions about amyotrophic lateral sclerosis treatmentsQuantifying short-term dynamics of Parkinson's disease using self-reported symptom data from an Internet social network.The potential research impact of patient reported outcomes on osteogenesis imperfecta.Evaluation of an online platform for multiple sclerosis research: patient description, validation of severity scale, and exploration of BMI effects on disease course.Preferred features of oral treatments and predictors of non-adherence: two web-based choice experiments in multiple sclerosis patients.Online assessment of ALS functional rating scale compares well to in-clinic evaluation: a prospective trialThe real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis.Hypothesis: higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions.Patient-Reported Outcome Measures in Safety Event Reporting: PROSPER Consortium guidance.Feasibility of a web-based survey of hallucinations and assessment of visual function in patients with Parkinson's disease.Innovations in e-health.ALS Untangled No. 20: the Deanna protocol.Correction of: Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level.Prevalence of depression in amyotrophic lateral sclerosis and other motor disorders.Modifiable barriers to enrollment in American ALS research studies.Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com).Neuronal loss associated with cognitive performance in amyotrophic lateral sclerosis: an (11C)-flumazenil PET study.Letter to the editor: quality of mental health information on Wikipedia.Measuring function in advanced ALS: validation of ALSFRS-EX extension items.A rapid screening battery to identify frontal dysfunction in patients with ALS.Getting stem cell patients 'on the grid'.SOD1 and cognitive dysfunction in familial amyotrophic lateral sclerosis.E-mental health: a medium reaches maturity.Prevalence of depression in a 12-month consecutive sample of patients with ALS.Changes in memory for emotional material in amyotrophic lateral sclerosis (ALS).The power of social networking in medicine.
P50
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P50
description
hulumtues
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researcher
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wetenschapper
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հետազոտող
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name
Paul Wicks
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Paul Wicks
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Paul Wicks
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Paul Wicks
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Paul Wicks
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type
label
Paul Wicks
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Paul Wicks
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Paul Wicks
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Paul Wicks
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Paul Wicks
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Wicks P
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Paul Wicks
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Paul Wicks
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Paul Wicks
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Paul Wicks
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Paul Wicks
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P1053
C-6128-2011
P106
P1153
8285266300
P21
P31
P3829
P4012
P496
0000-0002-2293-9284