about
Active versus passive parental consent for improving participant recruitment and outcomes in studies targeting childrenDevelopment of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening."You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)."There's a whole different way of working with adolescents": interviews with Australian Genetic Counselors about their experiences with adolescent clients.Ethical dilemmas associated with genetic testing: which are most commonly seen and how are they managed?Confidentiality with adolescents in the medical setting: what do parents think?The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis."It was the missing piece": adolescent experiences of predictive genetic testing for adult-onset conditions.An international survey of predictive genetic testing in children for adult onset conditions.DNA testing for all.Adolescents with implantable cardioverter defibrillators: a patient and parent perspective.Is my mum going to hear this? Methodological and ethical challenges in qualitative health research with young people."Holding your breath": interviews with young people who have undergone predictive genetic testing for Huntington disease.Clinical Genetics and the Problem With Unqualified ConfidentialityAdolescents, Risk Behaviour and Confidentiality: When Would Australian Psychologists Breach Confidentiality to Disclose Information to Parents?Respecting Adolescents’ Autonomy (as Long as They Make the Right Choice)Introducing Qualitative Research: A Student Guide to the Craft of Doing Qualitative Research [Book Review]
P50
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P50
description
hulumtues
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researcher
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wetenschapper
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հետազոտող
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name
Rony Duncan
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Rony Duncan
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Rony Duncan
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Rony Duncan
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Rony Duncan
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type
label
Rony Duncan
@ast
Rony Duncan
@en
Rony Duncan
@es
Rony Duncan
@nl
Rony Duncan
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Rony Duncan
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Rony Duncan
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Rony Duncan
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Rony Duncan
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Rony Duncan
@sl
P106
P21
P31
P496
0000-0002-1602-7174
P569
2000-01-01T00:00:00Z