Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study.
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Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review.Seeing is Engaging: Vlogs as a Tool for Patient Engagement.Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review.Moving from Patient Advocacy to Partnership: A Long and Bumpy Road.Use of the nominal group technique to identify stakeholder priorities and inform survey development: an example with informal caregivers of people with scleroderma.
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Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study.
description
2015 nî lūn-bûn
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2015年の論文
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2015年学术文章
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2015年学术文章
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2015年学术文章
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2015年学术文章
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name
Peer Support and Mentorship in ...... s in Emerging Adulthood Study.
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Peer Support and Mentorship in ...... s in Emerging Adulthood Study.
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type
label
Peer Support and Mentorship in ...... s in Emerging Adulthood Study.
@en
Peer Support and Mentorship in ...... s in Emerging Adulthood Study.
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prefLabel
Peer Support and Mentorship in ...... s in Emerging Adulthood Study.
@en
Peer Support and Mentorship in ...... s in Emerging Adulthood Study.
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P2860
P1476
Peer Support and Mentorship in ...... s in Emerging Adulthood Study.
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P2093
Maya Doyle
P2860
P2888
P356
10.1007/S40271-014-0085-9
P577
2015-01-01T00:00:00Z