about
Ethnic and socioeconomic variation in incidence of congenital heart defectsModelling survival and mortality risk to 15 years of age for a national cohort of children with serious congenital heart defects diagnosed in infancy.Unexpected deaths and unplanned re-admissions in infants discharged home after cardiac surgery: a systematic review of potential risk factors.Self-Reported Health Experiences of Children Living with Congenital Heart Defects: Including Patient-Reported Outcomes in a National Cohort Study.Quality of life and congenital heart defects: comparing parent and professional values.Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis.Using multiple sources to improve and measure case ascertainment in surveillance studies: 20 years of the British Paediatric Surveillance Unit.Going home after infant cardiac surgery: a UK qualitative study.Death and Emergency Readmission of Infants Discharged After Interventions for Congenital Heart Disease: A National Study of 7643 Infants to Inform Service Improvement.Identifying improvements to complex pathways: evidence synthesis and stakeholder engagement in infant congenital heart disease.Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: a qualitative study.Late clinical presentation of congenital adrenal hyperplasia in older children: findings from national paediatric surveillance.Patient-reported quality of life outcomes for children with serious congenital heart defects.Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review.Combining qualitative and quantitative operational research methods to inform quality improvement in pathways that span multiple settingsSurveillance of rare diseases: a public health evaluation of the British Paediatric Surveillance Unit.Ethics, governance and consent in the UK: implications for research into the longer-term outcomes of congenital heart defects.Comparing the clinical and economic effects of clinical examination, pulse oximetry, and echocardiography in newborn screening for congenital heart defects: a probabilistic cost-effectiveness model and value of information analysis."I was so worried about every drop of milk" - feeding problems at home are a significant concern for parents after major heart surgery in infancy.Mortality with congenital heart defects in England and Wales, 1959-2009: exploring technological change through period and birth cohort analysis.Sharing and reuse of individual participant data from clinical trials: principles and recommendations.The impact and efficacy of routine pulse oximetry screening for CHD in a local hospital.Functional health status of adults with tetralogy of Fallot: matched comparison with healthy siblings.Parents' Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum.Twenty years of active paediatric surveillance in the the UK and Republic of IrelandParents� Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum (Preprint)Life Study: a UK-wide birth cohort study of environment, development, health, and wellbeingIncidence and clinical features of congenital adrenal hyperplasia in Great BritainThe implementation of a new parallel child health recordChallenges for funders in monitoring compliance with policies on clinical trials registration and reporting: analysis of funding and registry data in the UKPrevalence of permanent childhood hearing loss detected at the universal newborn hearing screen: Systematic review and meta-analysisEthnic-specific mortality of infants undergoing congenital heart surgery in England and WalesRisk factors for permanent childhood hearing impairment
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description
hulumtuese
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հետազոտող
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name
Rachel Knowles
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Rachel Knowles
@en
Rachel Knowles
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Rachel Knowles
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Rachel Knowles
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type
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Rachel Knowles
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Rachel Knowles
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Rachel Knowles
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Rachel Knowles
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Rachel Knowles
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prefLabel
Rachel Knowles
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Rachel Knowles
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Rachel Knowles
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Rachel Knowles
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Rachel Knowles
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P69
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P1053
L-3236-2018
P106
P21
P31
P3829
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0000-0002-5490-7682