A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders.
about
Present and future challenges in the treatment of haemophilia: the patient's perspectiveThe evolution of comprehensive haemophilia care in the United States: perspectives from the frontline.NHF-McMaster Guideline on Care Models for Haemophilia Management.Quality of haemophilia care in The Netherlands: new standards for optimal careCurrent and evolving features in the clinical management of haemophiliaHaemophilia utilization group study - Part Va (HUGS Va): design, methods and baseline data.Dental infections increase the likelihood of hospital admissions among adult patients with sickle cell disease.Public health surveillance and data collection: general principles and impact on hemophilia care.Hospital volume, hospital teaching status, patient socioeconomic status, and outcomes in patients hospitalized with sickle cell disease.Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres.A public health approach to the prevention of inhibitors in hemophilia.Public health surveillance of nonmalignant blood disorders.Impact of care at comprehensive cancer centers on outcome: Results from a population-based studyMen with severe hemophilia in the United States: birth cohort analysis of a large national databaseThe influence of the culture of care on informal caregivers' experiences.The European Principles of Haemophilia Care: a pilot investigation of adherence to the principles in Europe.Perceptions of Men With Moderate to Severe Hemophilia Regarding the Management of Their Chronic Disorder and Utilization of Community-Based Support.Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status.US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization.The demographics of the United States haemophilia treatment centre social workers: the results of a national survey.Web-enabled registry of inherited bleeding disorders in Portugal: conditions and perception of the patients.European principles of haemophilia care.National needs assessment of patients treated at the United States Federally-Funded Hemophilia Treatment Centers.Challenges in transition to adulthood for young adult patients with hemophilia: Quantifying the psychosocial issues and developing solutions.Birth defects and disabilities: a public health issue for the 21st century.Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands.
P2860
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P2860
A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders.
description
2005 nî lūn-bûn
@nan
2005年の論文
@ja
2005年学术文章
@wuu
2005年学术文章
@zh
2005年学术文章
@zh-cn
2005年学术文章
@zh-hans
2005年学术文章
@zh-my
2005年学术文章
@zh-sg
2005年學術文章
@yue
2005年學術文章
@zh-hant
name
A model for a regional system ...... are chronic genetic disorders.
@en
A model for a regional system ...... are chronic genetic disorders.
@nl
type
label
A model for a regional system ...... are chronic genetic disorders.
@en
A model for a regional system ...... are chronic genetic disorders.
@nl
prefLabel
A model for a regional system ...... are chronic genetic disorders.
@en
A model for a regional system ...... are chronic genetic disorders.
@nl
P2093
P2860
P356
P1476
A model for a regional system ...... are chronic genetic disorders.
@en
P2093
Ann Forsberg
Brenda Riske
Judith R Baker
Sally O Crudder
P2860
P304
P356
10.2105/AJPH.2004.051318
P407
P577
2005-09-29T00:00:00Z