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The relevance of different trust models for representation in patient organizations: conceptual considerations.Beyond competence: advance directives in dementia researchThe usual suspects: why techno-fixing dementia is flawed.Has dementia research lost its sense of reality? A descriptive analysis of eligibility criteria of Dutch dementia research protocols.The implausibility of response shifts in dementia patients.Morally Relevant Similarities and Differences Between Children and Dementia Patients as Research Subjects: Representation in Legal Documents and Ethical Guidelines.Epistemic injustice in dementia and autism patient organizations: An empirical analysis.Representing autism: Challenges of collective representation in German and Israeli associations for and of autistic people.Dementia research and advance consent: it is not about critical interestsDementia and advance directives: some empirical and normative concernsDutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocolPatient Representation and Advocacy for Alzheimer Disease in Germany and IsraelIntegrating Advance Research Directives into the European Legal FrameworkA mobile revolution for healthcare? Setting the agenda for bioethicsNational Standards for Public Involvement in Research: missing the forest for the treesThe Challenge of Demandingness in Citizen Science and Participatory ResearchOne For All, All For One? Collective Representation in Healthcare PolicyPatient Representation: Mind the Gap Between Individual and Collective ClaimsReturn to childhood? Against the infantilization of people with dementiaSERIES: eHealth in primary care. Part 2: Exploring the ethical implications of its application in primary care practiceUnderstanding (in) Consent for GovernanceAutism, autonomy, and authenticityThe ethics of genome editing in non-human animals: a systematic review of reasons reported in the academic literatureAfter the fact-the case of CRISPR babies
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P50
description
hulumtuese
@sq
researcher
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wetenschapper
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հետազոտող
@hy
name
Karin Rolanda Jongsma
@ast
Karin Rolanda Jongsma
@en
Karin Rolanda Jongsma
@es
Karin Rolanda Jongsma
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type
label
Karin Rolanda Jongsma
@ast
Karin Rolanda Jongsma
@en
Karin Rolanda Jongsma
@es
Karin Rolanda Jongsma
@nl
prefLabel
Karin Rolanda Jongsma
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Karin Rolanda Jongsma
@en
Karin Rolanda Jongsma
@es
Karin Rolanda Jongsma
@nl
P106
P21
P31
P496
0000-0001-8135-6786