'Even if they ask you to stand by a tree all day, you will have to do it (laughter)...!': community voices on the notion and practice of informed consent for biomedical research in developing countries
about
Taking tissue seriously means taking communities seriouslyConsent and community engagement in diverse research contextsUnderstandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali.Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in NigeriaSeeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experienceExperiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in KenyaEthical challenges that arise at the community interface of health research: village reporters' experiences in Western KenyaI'm positive, but i'm negative: Competing Voices in Informed Consent and Implications for HIV vaccine trials.Expression of therapeutic misconception amongst Egyptians: a qualitative pilot study.Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study.A mixed-methods study on perceptions towards use of Rapid Ethical Assessment to improve informed consent processes for health research in a low-income settingTailoring the process of informed consent in genetic and genomic researchStrengthening the informed consent process in international health research through community engagement: The KEMRI-Wellcome Trust Research Programme Experience.The ethics of health systems research in low- and middle-income countries: a call to action.'The words will pass with the blowing wind': staff and parent views of the deferred consent process, with prior assent, used in an emergency fluids trial in two African hospitals.Current practice of public involvement activities in biomedical research and innovation: a systematic qualitative review.Working with Concepts: The Role of Community in International Collaborative Biomedical Research.The informed consent process in a rural African setting: a case study of the Kassena-Nankana district of Northern Ghana.Motivations, understanding, and voluntariness in international randomized trials.Evaluating community engagement in global health research: the need for metrics.Why do individuals agree to enrol in clinical trials? A qualitative study of health research participation in Blantyre, MalawiPerceptions of Research Bronchoscopy in Malawian Adults with Pulmonary Tuberculosis: A Cross-Sectional Study.Tailoring information provision and consent processes to research contexts: the value of rapid assessments.Considerations for Returning Research Results to Culturally Diverse Participants and Families of Decedents."I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa.A qualitative study using traditional community assemblies to investigate community perspectives on informed consent and research participation in western Kenya'All her children are born that way': gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya.Challenges for consent and community engagement in the conduct of cluster randomized trial among school children in low income settings: experiences from Kenya.Taking stock of the ethical foundations of international health research: pragmatic lessons from the IU-Moi Academic Research Ethics Partnership.Composition, training needs and independence of ethics review committees across Africa: are the gate-keepers rising to the emerging challenges?Ethics and the ethnography of medical research in Africa.Community perspectives on research consent involving vulnerable children in Western KenyaTaking social relationships seriously: lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast.Beginning community engagement at a busy biomedical research programme: experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, KenyaPlacing ethics in the centre: negotiating new spaces for ethical research in conflict situations.Pediatric assent for a study of antiretroviral therapy dosing for children in Western Kenya: a case study in international research collaboration.Predictors of consent to pharmacogenomics testing in the IDEAL study.Ugandan men's attitudes toward their partner's participation in antenatal HIV testing.Okukkera Ng'omuzungu (lost in translation): understanding the social value of global health research for HIV/AIDS research participants in Uganda."I understood…but some parts were confusing and hard to grasp": Patients' perception of informed consent forms and clinical trials in Eldoret, Kenya.
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'Even if they ask you to stand by a tree all day, you will have to do it (laughter)...!': community voices on the notion and practice of informed consent for biomedical research in developing countries
description
im Juli 2005 veröffentlichter wissenschaftlicher Artikel
@de
scientific article published on 01 July 2005
@en
wetenschappelijk artikel
@nl
наукова стаття, опублікована в липні 2005
@uk
name
'Even if they ask you to stand ...... search in developing countries
@en
'Even if they ask you to stand ...... search in developing countries
@nl
type
label
'Even if they ask you to stand ...... search in developing countries
@en
'Even if they ask you to stand ...... search in developing countries
@nl
prefLabel
'Even if they ask you to stand ...... search in developing countries
@en
'Even if they ask you to stand ...... search in developing countries
@nl
P1476
'Even if they ask you to stand ...... search in developing countries
@en
P2093
P304
P356
10.1016/J.SOCSCIMED.2004.12.003
P407
P577
2005-07-01T00:00:00Z