Attitudes of parents toward the return of targeted and incidental genomic research findings in children
about
Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.Living laboratory: whole-genome sequencing as a learning healthcare enterprise.Perspectives on genetic and genomic technologies in an academic medical center: the duke experienceChallenges in Studying Modifiable Risk Factors for Birth DefectsMaternal Consequences of the Detection of Fragile X Carriers in Newborn ScreeningDisclosing Secondary Findings from Pediatric Sequencing to Families: Considering the "Benefit to Families"Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their FamiliesReturning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.Patients' views on incidental findings from clinical exome sequencing.Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research.Preferences for return of incidental findings from genome sequencing among women diagnosed with breast cancer at a young age.Adolescent perspectives on the return of individual results in genomic addiction research.How, who, and when: preferences for delivery of genome sequencing results among women diagnosed with breast cancer at a young age.Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in BiobankingEvidence of broad-based family support for the use of archival childhood tumour samples in future research.Genome-Wide Sequencing for Prenatal Detection of Fetal Single-Gene Disorders.Attitudes, knowledge and consequences of uncertain genetic findings in hypertrophic cardiomyopathy.Impact of Receiving Secondary Results from Genomic Research: A 12-Month Longitudinal Study.Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders.Public's Views toward Return of Secondary Results in Genomic Sequencing: It's (Almost) All about the Choice.APPLaUD: access for patients and participants to individual level uninterpreted genomic data.Parental Perception of Self-Empowerment in Pediatric Pharmacogenetic Testing: The Reactions of Parents to the Communication of Actual and Hypothetical CYP2D6 Test Results.Mothers' appreciation of chromosomal microarray analysis for autism spectrum disorder.Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research.Informed Consent and the Disclosure of Clinical Results to Research Participants.Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process
P2860
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P2860
Attitudes of parents toward the return of targeted and incidental genomic research findings in children
description
wetenschappelijk artikel
@nl
наукова стаття, опублікована в серпні 2014
@uk
name
Attitudes of parents toward th ...... research findings in children
@en
Attitudes of parents toward th ...... research findings in children
@nl
type
label
Attitudes of parents toward th ...... research findings in children
@en
Attitudes of parents toward th ...... research findings in children
@nl
prefLabel
Attitudes of parents toward th ...... research findings in children
@en
Attitudes of parents toward th ...... research findings in children
@nl
P2093
P2860
P50
P356
P1433
P1476
Attitudes of parents toward th ...... research findings in children
@en
P2093
Andrew C Orr
Christopher R McMaster
Colleen O'Connell
Conrad V Fernandez
David Malkin
Johane M Robitaille
Meghan Ferguson
Nada Jabado
Poul H Sorensen
P2860
P2888
P304
P356
10.1038/GIM.2013.201
P407
P577
2014-08-01T00:00:00Z