Dynamic consent: a patient interface for twenty-first century research networks
about
Redefining genomic privacy: trust and empowermentCitizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiativesBest Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income SettingsHas the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital eraBetween Openness and Privacy in GenomicsResearch participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysisGoverning the research-care divide in clinical biobanking: Dutch perspectivesImproving the informed consent process in international collaborative rare disease research: effective consent for effective research.Opportunities and Challenges for Drug Development: Public-Private Partnerships, Adaptive Designs and Big DataAddressing Benefits, Risks and Consent in Next Generation Sequencing StudiesObtaining informed consent for genomics research in Africa: analysis of H3Africa consent documentsBalancing Benefits and Risks of Immortal Data: Participants' Views of Open Consent in the Personal Genome ProjectBroad Consent for Research With Biological Samples: Workshop ConclusionsSamples and data accessibility in research biobanks: an explorative surveyControlled Access under Review: Improving the Governance of Genomic Data AccessPatient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative StudyRespecting Autonomy Over Time: Policy and Empirical Evidence on Re-Consent in Longitudinal Biomedical ResearchOn moving targets and magic bullets: Can the UK lead the way with responsible data linkage for health research?Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical researchEvaluating the consent preferences of UK research volunteers for genetic and clinical studiesOpen access data sharing in genomic researchPatient/family views on data sharing in rare diseases: study in the European LeukoTreat project.Open consent, biobanking and data protection law: can open consent be 'informed' under the forthcoming data protection regulation?Big Data in medical research and EU data protection law: challenges to the consent or anonymise approachConsent and confidentiality in the light of recent demands for data sharing.Real-world data in the United Kingdom: opportunities and challengesWho should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.iCONCUR: informed consent for clinical data and bio-sample use for research.All your data (effectively) belong to us: data practices among direct-to-consumer genetic testing firms.Returning findings within longitudinal cohort studies: the 1958 birth cohort as an exemplar.Testing an online, dynamic consent portal for large population biobank research.Living laboratory: whole-genome sequencing as a learning healthcare enterprise.Public trust in health information sharing: implications for biobanking and electronic health record systemsThe evolution of withdrawal: negotiating research relationships in biobankingPerceptions of patients with inflammatory bowel diseases on biobankingUsing digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan.Clinical Research Informatics Contributions from 2015.Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.Molecular Tumor Boards: Ethical Issues in the New Era of Data Medicine.A qualitative study of participants' views on re-consent in a longitudinal biobank.
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P2860
Dynamic consent: a patient interface for twenty-first century research networks
description
2015 nî lūn-bûn
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2015 թուականի Փետրուարին հրատարակուած գիտական յօդուած
@hyw
2015 թվականի փետրվարին հրատարակված գիտական հոդված
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2015年の論文
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2015年学术文章
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2015年学术文章
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2015年学术文章
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2015年学术文章
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2015年学术文章
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2015年學術文章
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Dynamic consent: a patient interface for twenty-first century research networks
@ast
Dynamic consent: a patient interface for twenty-first century research networks
@en
Dynamic consent: a patient interface for twenty-first century research networks
@nl
type
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Dynamic consent: a patient interface for twenty-first century research networks
@ast
Dynamic consent: a patient interface for twenty-first century research networks
@en
Dynamic consent: a patient interface for twenty-first century research networks
@nl
prefLabel
Dynamic consent: a patient interface for twenty-first century research networks
@ast
Dynamic consent: a patient interface for twenty-first century research networks
@en
Dynamic consent: a patient interface for twenty-first century research networks
@nl
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P921
P3181
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Dynamic consent: a patient interface for twenty-first century research networks
@en
P2093
David Lund
Karen Melham
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P356
10.1038/EJHG.2014.71
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P577
2015-02-01T00:00:00Z