Public expectations for return of results from large-cohort genetic research - Test2 - elhamkhani - TriplyDB

Public expectations for return of results from large-cohort genetic research

Public expectations for return of results from large-cohort genetic research

http://www.wikidata.org/entity/Q28754402

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"Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studies Evolving approaches to the ethical management of genomic data Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature Return of individual research results and incidental findings: facing the challenges of translational science Public preferences for the return of research results in genetic research: a conjoint analysis Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research Next-generation sequencing-based genome diagnostics across clinical genetics centers: implementation choices and their effects Evaluating the consent preferences of UK research volunteers for genetic and clinical studies Bioethics in popular science: evaluating the media impact of The Immortal Life of Henrietta Lacks on the biobank debate Testing for sexually transmitted infections in a population-based sexual health survey: development of an acceptable ethical approach New models for large prospective studies: is there a better way?Qualitative thematic analysis of consent forms used in cancer genome sequencing Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study Communication of genetic test results to family and health-care providers following disclosure of research results.Self-guided management of exome and whole-genome sequencing results: changing the results return model.Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing.Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study Return of results: ethical and legal distinctions between research and clinical care.Tailoring the process of informed consent in genetic and genomic research Ethical challenges for the design and conduct of mega-biobanking from Great East Japan Earthquake victims.Models of consent to return of incidental findings in genomic research Only connect: personal genomics and the future of American medicine.Returning findings within longitudinal cohort studies: the 1958 birth cohort as an exemplar.A framework for analyzing the ethics of disclosing genetic research findings.Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project Managing incidental findings and research results in genomic research involving biobanks and archived data sets.Molecular genetic testing and the future of clinical genomics.Managing clinically significant findings in research: the UK10K example.Researcher practices on returning genetic research results.Preferences regarding genetic research results: comparing veterans and nonveterans responses Cancer patient perceptions on the ethical and legal issues related to biobanking Current practice of public involvement activities in biomedical research and innovation: a systematic qualitative review.Genetic research with stored biological materials: ethics and practice.Public's attitudes on participation in a biobank for research: an Italian survey Attitudes of African-American parents about biobank participation and return of results for themselves and their children Impact of behavioral genetic evidence on the perceptions and dispositions of child abuse victims.Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.Connecting patients, researchers and clinical genetics services: the experiences of participants in the Australian Ovarian Cancer Study (AOCS).

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P2860

Public expectations for return of results from large-cohort genetic research

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2008年の論文

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2008年論文

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Public expectations for return of results from large-cohort genetic research

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Public expectations for return of results from large-cohort genetic research

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American Journal of Bioethics

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Public expectations for return of results from large-cohort genetic research

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P2093

David Kaufman

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Gail Geller

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Joan Scott

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Juli Murphy

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Kathy Hudson

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Lisa LeRoy

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P2860

Attitudes of the Japanese public and doctors towards use of archived information and samples without informed consent: preliminary findings based on focus group interviews

Letting the genome out of the bottle--will we get our wish?

The uneasy ethical and legal underpinnings of large-scale genomic biobanks.

Informed consent for population-based research involving genetics.

Disclosing individual results of clinical research: implications of respect for participants.

Disclosing individual genetic results to research participants.

Considering the nature of individual research results.

Active and passive cigarette smoking and the risk of cervical neoplasia

Ethical, legal, and social implications of biobanks for genetics research.

The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.

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