The past, present, and future of the debate over return of research results and incidental findings
about
Incidental Findings with Genomic Testing: Implications for Genetic Counseling PracticePublic preferences for the return of research results in genetic research: a conjoint analysisOnline questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic dataEthical and legal implications of whole genome and whole exome sequencing in African populations.Self-guided management of exome and whole-genome sequencing results: changing the results return model.Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing.The challenges of genome analysis in the health care setting.Disclosure of genetic research results to members of a founder population.Flexible positions, managed hopes: the promissory bioeconomy of a whole genome sequencing cancer study.Using community-based participatory research principles to develop more understandable recruitment and informed consent documents in genomic research.Identification of Medically Actionable Secondary Findings in the 1000 Genomes.Automatic Placement of Genomic Research Results in Medical Records: Do Researchers Have a Duty? Should Participants Have a Choice?Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.Incidental variants are critical for genomicsA closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairsThe attitudes of people with sarcoma and their family towards genomics and incidental information arising from genetic researchStakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.The Role of Law in the Debate over Return of Research Results and Incidental Findings: The Challenge of Developing Law for Translational Science.Ethical, legal, and social implications of incorporating genomic information into electronic health records.Biobanks containing clinical specimens: defining characteristics, policies, and practices.Returning genome sequences to research participants: Policy and practice.Physicians' attitudes about multiplex tumor genomic testing.A Systematic Review of the Management of Incidental Findings in Genomic Research.Discussing molecular testing in oncology care: Comparing patient and physician information preferences.Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.Secondary variants--in defense of a more fitting term in the incidental findings debate.The development of a preference-setting model for the return of individual genomic research results.Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.Meeting summary: Ethical aspects of whole exome and whole genome sequencing studies (WES/WGS) in rare diseases, Tel Aviv, Israel, January 2013.Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research.Improving the quality of 'personalized medicine' research and practice: through an ethical lensInformed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigatorsEthical Issues in Contemporary Clinical GeneticsOpportunities and Challenges for Genetic Studies of End-Stage Renal Disease in CanadaWhat People Want to Know About Their Genes: A Critical Review of the Literature on Large-Scale Genome Sequencing Studies
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P2860
The past, present, and future of the debate over return of research results and incidental findings
description
2012 nî lūn-bûn
@nan
2012年の論文
@ja
2012年論文
@yue
2012年論文
@zh-hant
2012年論文
@zh-hk
2012年論文
@zh-mo
2012年論文
@zh-tw
2012年论文
@wuu
2012年论文
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2012年论文
@zh-cn
name
The past, present, and future ...... esults and incidental findings
@ast
The past, present, and future ...... esults and incidental findings
@en
type
label
The past, present, and future ...... esults and incidental findings
@ast
The past, present, and future ...... esults and incidental findings
@en
prefLabel
The past, present, and future ...... esults and incidental findings
@ast
The past, present, and future ...... esults and incidental findings
@en
P2860
P356
P1433
P1476
The past, present, and future ...... esults and incidental findings
@en
P2093
Susan M Wolf
P2860
P2888
P304
P356
10.1038/GIM.2012.26
P407
P577
2012-04-01T00:00:00Z