Characterizing biobank organizations in the U.S.: results from a national survey - Test2 - elhamkhani - TriplyDB

Characterizing biobank organizations in the U.S.: results from a national survey

Characterizing biobank organizations in the U.S.: results from a national survey

http://www.wikidata.org/entity/Q36997918

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Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era Current status, challenges, policies, and bioethics of biobanks The MICHR Genomic DNA BioLibrary: An Empirical Study of the Ethics of Biorepository Development Public preferences for the return of research results in genetic research: a conjoint analysis When Children Become Adults: Should Biobanks Re-Contact?Samples and data accessibility in research biobanks: an explorative survey Prioritizing Approaches to Engage Community Members and Build Trust in Biobanks: A Survey of Attitudes and Opinions of Adults within Outpatient Practices at the University of Maryland Stakeholder engagement in policy development: challenges and opportunities for human genomics Extracting research-quality phenotypes from electronic health records to support precision medicine Practical guidance on informed consent for pediatric participants in a biorepository Biobanks and electronic medical records: enabling cost-effective research The use of biospecimens in population-based research: a review of the National Cancer Institute's Division of Cancer Control and Population Sciences grant portfolio Commercialization and stem cell research: a review of emerging issues "It's all about trust": reflections of researchers on the complexity and controversy surrounding biobanking in South Africa Consensus-Driven Development of a Terminology for Biobanking, the Duke Experience.Developing a semantically rich ontology for the biobank-administration domain.A critical analysis of cancer biobank practices in relation to biospecimen quality Community engagement in US biobanking: multiplicity of meaning and method.Public perspectives on biospecimen procurement: what biorepositories should consider Self-reported race and ethnicity of US biobank participants compared to the US Census "Collection of a lifetime: a practical approach to developing a longitudinal collection of women's healthcare biological samples".Disparities in knowledge and willingness to donate research biospecimens: a mixed-methods study in an underserved urban community.Stewardship practices of U.S. biobanks Underutilization of specimens in biobanks: an ethical as well as a practical concern?Neglected ethical issues in biobank management: Results from a U.S. study Informed consent for biobanking: consensus-based guidelines for adequate comprehension.IRB practices and policies regarding the secondary research use of biospecimens.'Biohoarding': treasures not seen, stories not told.Quality management of biorepositories.Perceptions of patients with inflammatory bowel diseases on biobanking Personalized assent for pediatric biobanks.Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks.A Plan for Academic Biobank Solvency-Leveraging Resources and Applying Business Processes to Improve Sustainability.Sustainability in the Modern Biorepository Environment from the Perspective of the Tissue Procurement Core at the University of Iowa Fundamental Considerations for Biobank Legacy Planning.Informed consent in the era of biobanks Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Digital pathology and image analysis augment biospecimen annotation and biobank quality assurance harmonization.Personalized medicine: challenges and opportunities for translational bioinformatics.Incorporating Concomitant Medications into Genome-Wide Analyses for the Study of Complex Disease and Drug Response

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P2860

Characterizing biobank organizations in the U.S.: results from a national survey

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Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays

Finishing the euchromatic sequence of the human genome

Identifiability in biobanks: models, measures, and mitigation strategies

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study.

An empirical survey on biobanking of human genetic material and data in six EU countries.

Biobanks in the United States: how to identify an undefined and rapidly evolving population

Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Stem cell banking: between traceability and identifiability

Offering individual genetic research results: context matters.

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