Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
about
Shared topics on the experience of people with haemophilia living in the UK and the USA and the influence of individual and contextual variables: Results from the HERO qualitative study.Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.Care models in the management of haemophilia: a systematic reviewIdentifying information needs among children and teens living with haemophiliaAn overview of current trends and gaps in patient-reported outcome measures used in haemophilia.Challenges in the management of haemophilia on transition from adolescence to adulthood."It was a lot Tougher than I Thought It would be". A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier.Prophylaxis usage, bleeding rates, and joint outcomes of hemophilia, 1999 to 2010: a surveillance project.Life experience of the adult and ageing patient with haemophilia. Practical aspects for psychological support.Psychosocial care for children with haemophilia and their parents in the Netherlands.Perceptions of Men With Moderate to Severe Hemophilia Regarding the Management of Their Chronic Disorder and Utilization of Community-Based Support.Importance of literacy for self-reported health-related quality of life: a study of boys with haemophilia in Brazil.The experience of being a female carrier of haemophilia and the mother of a haemophilic child.Empower Me? Yes, Please, But in My Way: Different Patterns of Experiencing Empowerment in Patients with Chronic Conditions.Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18-30 years) with hemophilia.Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status.Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.The impact of a haemophilia education intervention on the knowledge and health related quality of life of parents of Indian children with haemophilia.The demographics, treatment characteristics and quality of life of adult people with haemophilia in China - results from the HERO study.A tortuous route to a capable fatherhood: the experience of being a father to a child with severe haemophilia.Understanding stakeholder important outcomes and perceptions of equity, acceptability and feasibility of a care model for haemophilia management in the US: a qualitative study.Oral health in children and adolescents with haemophilia.Effectiveness of two psychological interventions for pain management, emotional regulation and promotion of quality of life among adult Portuguese men with haemophilia (PSY-HaEMOPEQ): study protocol for a single-centre prospective randomised controlHaemophilia Experiences, Results and Opportunities (HERO) study: treatment-related characteristics of the population.Impact of personality and depression on quality of life in patients with severe haemophilia in Korea.Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics.Coping in adult patients with severe haemophilia.Effectiveness of an educational intervention of physiotherapy in parents of children with haemophilia.Haemophilia Experiences, Results and Opportunities (HERO) Study: influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia.Evaluating the psychosocial impact of hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders.A study of the stressors and coping behaviors of parents of Chinese hemophilic children.National needs assessment of patients treated at the United States Federally-Funded Hemophilia Treatment Centers.Challenges in transition to adulthood for young adult patients with hemophilia: Quantifying the psychosocial issues and developing solutions.Improving comprehensive care in the haemophilia community: building on the HERO Study.The relationship between target joints and direct resource use in severe haemophilia.
P2860
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P2860
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
description
2011 nî lūn-bûn
@nan
2011年の論文
@ja
2011年学术文章
@wuu
2011年学术文章
@zh-cn
2011年学术文章
@zh-hans
2011年学术文章
@zh-my
2011年学术文章
@zh-sg
2011年學術文章
@yue
2011年學術文章
@zh
2011年學術文章
@zh-hant
name
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
@en
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
@nl
type
label
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
@en
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
@nl
prefLabel
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
@en
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
@nl
P2093
P2860
P1433
P1476
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.
@en
P2093
F R M Y Cassis
HERO International Advisory Board
P2860
P304
P356
10.1111/J.1365-2516.2011.02683.X
P577
2011-11-08T00:00:00Z