Quantitative telemedicine ratings in Batten disease: implications for rare disease research
about
Neurobehavioral features and natural history of juvenile neuronal ceroid lipofuscinosis (Batten disease)Novel methods and technologies for 21st-century clinical trials: a review.Reliability and validity of the Wolfram Unified Rating Scale (WURS).Remote Assessment of Cognitive Function in Juvenile Neuronal Ceroid Lipofuscinosis (Batten disease): A Pilot Study of Feasibility and Reliability.Neurocognitive clinical outcome assessments for inborn errors of metabolism and other rare conditions.Methodology of clinical research in rare diseases: development of a research program in juvenile neuronal ceroid lipofuscinosis (JNCL) via creation of a patient registry and collaboration with patient advocates.Clinical trials in rare disease: challenges and opportunities.National randomized controlled trial of virtual house calls for Parkinson disease.Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study.Challenges of developing and conducting clinical trials in rare disorders.
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P2860
Quantitative telemedicine ratings in Batten disease: implications for rare disease research
description
2011 nî lūn-bûn
@nan
2011年の論文
@ja
2011年論文
@yue
2011年論文
@zh-hant
2011年論文
@zh-hk
2011年論文
@zh-mo
2011年論文
@zh-tw
2011年论文
@wuu
2011年论文
@zh
2011年论文
@zh-cn
name
Quantitative telemedicine rati ...... ions for rare disease research
@en
Quantitative telemedicine rati ...... ons for rare disease research.
@nl
type
label
Quantitative telemedicine rati ...... ions for rare disease research
@en
Quantitative telemedicine rati ...... ons for rare disease research.
@nl
prefLabel
Quantitative telemedicine rati ...... ions for rare disease research
@en
Quantitative telemedicine rati ...... ons for rare disease research.
@nl
P2093
P2860
P1433
P1476
Quantitative telemedicine rati ...... ions for rare disease research
@en
P2093
A Vierhile
E F Augustine
F J Marshall
N Newhouse
P2860
P304
P356
10.1212/WNL.0B013E3182377E29
P407
P577
2011-10-19T00:00:00Z