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Genetic testing and common disorders in a public health framework: how to assess relevance and possibilities. Background Document to the ESHG recommendations on genetic testing and common disordersGenetic testing in asymptomatic minors: background considerations towards ESHG RecommendationsUsers' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal storiesEmpirical research in bioethical journals. A quantitative analysisHow international is bioethics? A quantitative retrospective study.Attitudes of research participants and the general public towards genomic data sharing: a systematic literature reviewReflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnosticsPoints to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness.Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papersCarrier testing in minors: a systematic review of guidelines and position papersA review of the key issues associated with the commercialization of biobanksControlled Access under Review: Improving the Governance of Genomic Data AccessCrowdsourced direct-to-consumer genomic analysis of a family quartetFrom the principles of genomic data sharing to the practices of data access committeesChallenges of web-based personal genomic data sharingNewspaper coverage of biobanksReflections on the cost of "low-cost" whole genome sequencing: framing the health policy debateWhole-genome sequencing in health care. Recommendations of the European Society of Human Genetics.Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics."You want the right amount of oversight": interviews with data access committee members and experts on genomic data access.Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market.Predictive genetic testing in minors for adult-onset genetic diseases.Preconceptional genetic carrier testing and the commercial offer directly-to-consumersAre the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?"You hoped we would sleep walk into accepting the collection of our data": controversies surrounding the UK care.data scheme and their wider relevance for biomedical researchLegislation on direct-to-consumer genetic testing in seven European countries.Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening.To ban or not to ban? Clinical geneticists' views on the regulation of direct-to-consumer genetic testing.Developing a policy for paediatric biobanks: principles for good practice.Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmesAttitudes towards predictive genetic testing in minors for familial breast cancer: a systematic review.Responsible implementation of expanded carrier screening.Survey of European clinical geneticists on awareness, experiences and attitudes towards direct-to-consumer genetic testing.Attitudes of cystic fibrosis patients and parents toward carrier screening and related reproductive issues.A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes.'Nobody tosses a dwarf!' The relation between the empirical and the normative reexamined.Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion.Donation after uncontrolled cardiac death (uDCD): a review of the debate from a European perspective.Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing.
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