Patients' consent preferences for research uses of information in electronic medical records: interview and survey data. - Wikidata - thesis-toulmin - TriplyDB

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

http://www.wikidata.org/entity/Q30769352

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Medicine 2.0: social networking, collaboration, participation, apomediation, and openness The emergence of national electronic health record architectures in the United States and Australia: models, costs, and questions Feasibility of a patient decision aid regarding disclosure of personal health information: qualitative evaluation of the Health Care Information Directive "Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme Comparison of consumers' views on electronic data sharing for healthcare and research Patient and public views about the security and privacy of Electronic Health Records (EHRs) in the UK: results from a mixed methods study.Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK Genomic research and wide data sharing: views of prospective participants Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?The inadvertent disclosure of personal health information through peer-to-peer file sharing programs.Sociodemographic data collection for health equity measurement: a mixed methods study examining public opinions.Privacy and the secondary use of data for health research: experience in Canada and suggested directions forward.'Nothing is really safe': a focus group study on the processes of anonymizing and sharing of health data for research purposes.The acceptability of conducting data linkage research without obtaining consent: lay people's views and justifications.Dissenting from care.data: an analysis of opt-out forms.Sorry, You Can't Have That Information: Data Holder Confusion Regarding Privacy Requirements for Personal Health Information and the Potential Chilling Effect on Health Research.A population-based approach for implementing change from opt-out to opt-in research permissions.Involving users in the design of a randomised controlled trial of an intervention to promote early presentation in breast cancer: qualitative study A randomised controlled trial to compare opt-in and opt-out parental consent for childhood vaccine safety surveillance using data linkage: study protocol.A feasibility study of signed consent for the collection of patient identifiable information for a national paediatric clinical audit database.Recruiting patients to medical research: double blind randomised trial of "opt-in" versus "opt-out" strategies Managing clinical research permissions electronically: A novel approach to enhancing recruitment and managing consents.Parent perspectives on consent for the linkage of data to evaluate vaccine safety: a randomised trial of opt-in and opt-out consent.Informed consent, participation in, and withdrawal from a population based cohort study involving genetic analysis.Evaluating common de-identification heuristics for personal health information.Informed consent for research participation in frail older persons.A telephone survey of factors affecting willingness to participate in health research surveys Postal recruitment and consent obtainment from index cases of narcolepsy.Selection bias resulting from the requirement for prior consent in observational research: a community cohort of people with ischaemic heart disease.An evaluation of personal health information remnants in second-hand personal computer disk drives.Issues of patient consent: a study of paediatric high-dependency care.Management of endometriosis in general practice: the pathway to diagnosis.The confidentiality of patient and physician information in pharmacy prescription records.Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?Can patients be sure they are fully informed when representatives of surgical equipment manufacturers attend their operations?Extracting information from hospital records: what patients think about consent Joint replacement recipients' views about health information privacy.Patient informed governance of distributed research networks: results and discussion from six patient focus groups

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P2860

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

http://www.wikidata.org/entity/Q30769352

description

2003 nî lūn-bûn

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2003 թուականի Փետրուարին հրատարակուած գիտական յօդուած

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2003 թվականի փետրվարին հրատարակված գիտական հոդված

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2003年の論文

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Computerization of Medical Pra ...... ic Effectiveness investigators

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Donald J Willison

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Kalpana Nair

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P2860

Public standards and patients' control: how to keep electronic medical records accessible but private.

Challenges to human subject protections in US medical research.

The privacy paradox: laying Orwell's ghost to rest.

A descriptive feast but an evaluative famine: systematic review of published articles on primary care computing during 1980-97

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informed consent

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