Challenges and proposed solutions for formative research to inform systematic intervention development in rare and unstudied conditions: The case example of Xeroderma Pigmentosum.

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Challenges and proposed solutions for formative research to inform systematic intervention development in rare and unstudied conditions: The case example of Xeroderma Pigmentosum.

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2017 nî lūn-bûn

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2017年の論文

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2017年学术文章

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2017年学术文章

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2017年学术文章

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2017年学术文章

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2017年学术文章

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2017年學術文章

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Challenges and proposed soluti ...... mple of Xeroderma Pigmentosum.

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Challenges and proposed soluti ...... mple of Xeroderma Pigmentosum.

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Challenges and proposed soluti ...... mple of Xeroderma Pigmentosum.

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Challenges and proposed soluti ...... mple of Xeroderma Pigmentosum.

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Challenges and proposed soluti ...... mple of Xeroderma Pigmentosum.

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Challenges and proposed soluti ...... mple of Xeroderma Pigmentosum.

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Challenges and proposed soluti ...... mple of Xeroderma Pigmentosum.

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Kirby Sainsbury

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Xeroderma pigmentosum

Developing and evaluating complex interventions: the new Medical Research Council guidance

Vitamin D deficiency

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.

Appearance-based interventions to reduce ultraviolet exposure and/or increase sun protection intentions and behaviours: a systematic review and meta-analyses.

Cancer and neurologic degeneration in xeroderma pigmentosum: long term follow-up characterises the role of DNA repair.

Deep phenotyping of 89 xeroderma pigmentosum patients reveals unexpected heterogeneity dependent on the precise molecular defect

Are interventions to promote sun-protective behaviors in recreational and tourist settings effective? A systematic review with meta-analysis and moderator analysis.

Living with xeroderma pigmentosum: comprehensive photoprotection for highly photosensitive patients.

Experiences of stigma over the lifetime of people with xeroderma pigmentosum: A qualitative interview study in the United Kingdom.

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10.1111/BJHP.12287

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