about
Increasing Access to Clinical Trials and Innovative Therapy for Teenagers and Young Adults with Cancer - A Multiple Stakeholders and Multiple Steps Process.How frequently do young people with potential cancer symptoms present in primary care?Novel participatory methods of involving patients in research: naming and branding a longitudinal cohort study, BRIGHTLIGHT.Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer.Rates of inclusion of teenagers and young adults in England into National Cancer Research Network clinical trials: report from the National Cancer Research Institute (NCRI) Teenage and Young Adult Clinical Studies Development Group.Direct access to potential research participants for a cohort study using a confidentiality waiver included in UK National Health Service legal statutes.Developing a conceptual model of teenage and young adult experiences of cancer through meta-synthesis.Identifying the supportive care needs of adolescent and young adult survivors of cancer: a qualitative analysis and systematic literature review.Available, accessible, aware, appropriate, and acceptable: a strategy to improve participation of teenagers and young adults in cancer trials.Being normal, not vulnerable: case study of a 2-day residential programme for young adults with cancer."Your Place or Mine?" Priorities for a Specialist Teenage and Young Adult (TYA) Cancer Unit: Disparity Between TYA and Professional Perceptions.A scoping exercise of favourable characteristics of professionals working in teenage and young adult cancer care: 'thinking outside of the box'.National Cancer Research Institute Teenage and Young Adult Clinical Studies Group: The United Kingdom Approach to Research. International Perspectives on AYAO, Part 4.How young people describe the impact of living with and beyond a cancer diagnosis: feasibility of using social media as a research method.Recruitment of adolescents and young adults to cancer clinical trials--international comparisons, barriers, and implications.The art of age-appropriate care: reflecting on a conceptual model of the cancer experience for teenagers and young adults.Optimizing a Retention Strategy with Young People for BRIGHTLIGHT, a Longitudinal Cohort Study Examining the Value of Specialist Cancer Care for Young People.Qualitative study to understand the barriers to recruiting young people with cancer to BRIGHTLIGHT: a national cohort study in England.Multi-Professional Perspectives on Adolescent and Young Adult Oncology Across Europe: An e-Delphi Survey.003 PP: COLLABORATING WITH YOUNG PEOPLE TO SET THE AGENDA FOR SECONDARY ANALYSIS OF THE BRIGHTLIGHT DATASET.A participatory study of teenagers and young adults views on access and participation in cancer research.Sex, Body Image, and Relationships: A BRIGHTLIGHT Workshop on Information and Support Needs of Adolescents and Young Adults.Why can't we improve the timeliness of cancer diagnosis in children, teenagers, and young adults?Online information and support needs of young people with cancer: a participatory action research studyInvolving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvementThe perceptions of teenagers, young adults and professionals in the participation of bone cancer clinical trialsDescription of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in EnglandA Critical Review of the Impact of Sarcoma on Psychosocial WellbeingConceptualizing age-appropriate care for teenagers and young adults with cancer: a qualitative mixed-methods study.Poor accrual of teenagers and young adults into clinical trials in the UKDiagnostic timeliness in adolescents and young adults with cancer: a cross-sectional analysis of the BRIGHTLIGHT cohortEnhancing accrual to clinical trials of adolescents and young adults with cancerHealth professional perceptions of communicating with adolescents and young adults about bone cancer clinical trial participationQualitative study exploring patients experiences of being diagnosed and living with primary bone cancer in the UKDevelopment of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)Health care professional perceptions of online information and support for young people with cancer in the United KingdomResearch priorities for young people with cancer: a UK priority setting partnership with the James Lind AllianceDynamics and Challenges of Clinical Trials in Adolescents and Young Adults With CancerTransitioning adolescent and young adult cancer care research out of its adolescenceIssues experienced and support provided to adolescents and young adults at the end of active treatment for cancer: A rapid review of the literature
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